Why Can’t I Get Better? The Lyme MSDIS Map in Chronic Disease.


Published on Jun 2, 2015

Dr. Horowitz shares his experience in treating Lyme Disease, Tick Borne Illness, and related co-infections and to offer insight into the root causes for chronic illness and share his road map for recovery. Recorded at Western Connecticut State University on May 12, 2015

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4 Responses to Why Can’t I Get Better? The Lyme MSDIS Map in Chronic Disease.

  1. Vicky Hayse says:

    Jenna, thank you so much for sharing so much good, helpful information on this blog. As is the story of many Lyme patients, I went misdiagnosed for 7 years. In 2005 I was diagnosed with Neuro-Lyme by a LLMD. I took oral antibiotics for 3 1/2 years. Since then I have had one relapse after another. I am doing a lot of my own research. Thus, this blog has been very helpful to me. I am reading Dr. Horowitz’s book right now. I like his approach to treat the whole person. . .not just the Lyme. I have had great difficulty getting the help I need because most of my doctors here in Florida just shake their heads and say. . .no, you DO NOT have Lyme. We do not have Lyme in Florida. You may have MS, Parkinson’s or Lupus, but you definitely do not have Lyme. I don’t even try to discuss the issue with most of them. There is no point because they are so strongly intrenched in their belief.

    I did go to Shands in April (Gainesville, FL) They do not treat Lyme, but they are at least open to the possibility. My PT told me that if the spirochetes get to the basil ganglia part of the brain where the dopamine receptor are located. . .then you could have Lyme that LOOKS very much like Parkinson’s Disease. I nearly kissed his feet. It was so refreshing to have someone in the medical field admit to such a possibility. I was dx with Parkinson’s in 1998 and took PD meds for 5 years. Then, I asked my neurologist to let me back off the PD meds, because I did not feel they were helping any longer. Once I was dx with neuro-Lyme in 2005, I really felt like PD was out of the picture and my symptoms were really Lyme that looks like Parkinson’s. I know it is possible for me to have both conditions, but, unlike my PD buddies, I have periods of wellness when I have no symptoms and you cannot even tell anything is wrong with me.

    This has been a 16 year journey for me. I start to get better and then relapse happens and I have to start all over again. I just came through my longest period of wellness in 2014–23 months. I thought this disease was finally behind me. But in November 2014 all my symptoms returned with a vengeance. I went to an ARNP here in town who has treated some Lyme patients. She is very nice and has helped me some, but she has a tendency to treat all Lyme patients with the same protocol. I am doing some better, but not nearly as well as I was for most of last year. I did give up my cane and walker on Mother’s Day and I have been walking on my own. I’m very thankful. Meanwhile, my brother in Colorado Springs met with Dr. David Martz (Doctor with ALS on Under Our Skin documentary who really had Lyme). He gave my brother a list of 7 LLMD’s he knows professionally and personally and highly recommends. One of them is in Colorado Springs—very close to my brother. I am going to visit him in October and he is taking me to see one of the Lyme doctors on the list. God has been greatly at work to bring these details together. I have a friend who grew up in Denver and desired to go visit her parents. Her boss offered his frequent flyer miles to both of us. So we are going to go together for a week to Colorado. Truly a blessing from God. I am so thankful and hope to get some answers.
    Thanks for listening. Please continue to share . . .I have been greatly helped by the posts you share. Grateful me!!!

    • Jenna says:

      Hi Vicky –

      I certainly sympathize and empathize with you. I am also in Florida now and there is a LLMD in Jacksonville that would be better for you as follow-up is critical. The expense for treating Lyme between doctor visits, medicine and supplements is already prohibitive, I fear that if you add airline tickets you will be setting yourself up for failure.

      I have found a regular MD who will treat chronic Lyme in Crescent Beach, FL – is that within striking distance for you? If so, contact Dr. Long at Crescent Beach Walk-in Care.

      Don’t lose hope – remember, you are not alone!

      Jenna

  2. Max Stam says:

    Space missing – “co-infectionsand”

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