Jenna’s Lyme Video Blog
Video blog about chronic and/or neuro-Lyme
25 Responses to “What (Lyme disease/borrelia) Neuroborrelios can cause!”
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April 16th, 2009 at 8:25 am
Clancy
Google Lyme Disease and LDN, low dose naltrexine or is it naltrexone? Find the LDN web-site. Anyway, hearing good things about this and Lyme Disease, about to try it. But it must be from a reputable compounidng pharmacy. The LDN site lists some.
April 19th, 2009 at 2:21 pm
Cam
A federal report released this week confirming Gulf war Illness a real disease attributed it to Bromide pills given the soldiers (that cross the blood brain barrier). Doxycyline causes brain swelling [encephalitis] in children under 7, but CDC and wikipedia don’t say that, only FDA. The latter two only say doxy not prescribed for children due to it staining the teeth, etc. The symptoms of Lyme borreliosis and antibiotic induced lupus same. Disseminated spirochetes or pharamaceutical mayhem?
April 23rd, 2009 at 1:37 am
Daniel
That is so scary with neuro-toxins.
And the fact that it can cross the blood brain barrier. I will look ur profile up!
April 24th, 2009 at 6:13 am
Tim
See my personal profile for my Lyme history. But still wondering: Disseminated Borrelia (chronic Lyme) or antibiotic (doxy/cefuroxime; crossing blood brain barrier; possibly sending neuro-toxins deep into brain) induced lupus [AKA "Post-Lyme disease syndrome"]? If former, IV ceftriaxone indicated; latter, corticosteroids. Yet neither offered in six years of increasingly debilitating disease.
April 26th, 2009 at 9:45 am
Cam
Thank you so much…youre right.
There are so much science now.
But why are there so many doctors refuse to take part of the results!?
I dont have the answer and i think you didnt find an answer yet. They are stupid!!!
April 29th, 2009 at 9:19 am
Annemarie
This really makes you mad that stupid dumb docs refuse to wake up to Lyme Disease. How many more children will go through this before they do? they should all be ashamed of themselves to call themselves doctors.
April 30th, 2009 at 4:14 pm
Scott
Hi,
I don’t know how stupid, dumb docs could look at this little girl and have no compassion at all.There is so much science now to prove Lyme Disease is transmittable and can Happen to anyone at any time, even a child like this can get it, It’s a real shame I hope she gets all better very soon.
Johnny
May 3rd, 2009 at 7:54 am
Chris
Good 2 hear u have a Lyme dr.
We have alot of Lyme but no doctors knowing enough about it. And the climate gets warmer every year so more ticks.
We had to go to Germany to an expert ( he follows the ILADS recom. ) It is the country next to Austria. Good night from Sweden 01:01 Best regards!!!
May 4th, 2009 at 8:25 pm
William
Oh I’m so glad she’s better! I’ve had neurologica lyme for 2 years. It gave me many weird symptoms- my body started producing too much spinal fluid, and my headaches were so bad. I also had the neck pain. I’m getting treated by a “lyme literate” doctor. I just switched medicines because I didn’t respond to the first 2 kinds. Hopefully this one will work. Thank you for asking! Is there a lot of lyme in Sweden? My doctor told me the country with the most lyme is Austria, I didn’t know that!
May 5th, 2009 at 3:03 am
Francis
Hi! She is so much better now.And we hope it will last!Im sad to hear you have it aswell.Youre only a teenager,its terrible 2!
Its not fair the kids suffer
Like my girl.She was only 5 when she got it.
The hardest thing is how horrible she felt.But the second is we didnt get the right treatment here in Sweden.Like many! Did u get the right help?How do u feel now? Take care and thank you so much for the comment!!!I hope you will get better soon!!! Let me know!?
I wish u all the luck!!
May 6th, 2009 at 11:54 am
Dan
how is your daughter doing? I’m a teenager struggling with Lyme, it really is terrible. I cannot imagine a little girl like your daughter going through the pain. I really hope she is better.
May 7th, 2009 at 11:07 pm
Francis
Det är inte alla fästingar som bär på Borrelia bakterier eller dess sidoinfektioner.Så du behöver inte va orolig. Och blir hon sjuk eller får några symtom alls,om hon mår dåligt på något vis.Så vet du vad det kan bero på och hon behöver då antibiotika.Får hon isf inte hjälp i svenska sjukvården eller om dom ej hittar Borrelia bakterien,så finns Tbe & Borrelia patientföreningen som ni kan få hjälp av.Men som sagt det är inte alla fästingar som bär på smittan.Ha det bra!
May 8th, 2009 at 5:13 pm
Susy
I hope you get the best help !
I give her garlic alot. We eat alot of greek food. In my tzatziki i put alot of garlic.
May 11th, 2009 at 7:37 am
Jane
min syrra har fått en fästing nyss.. och ingen vet hur länge den varit där :’( hon fyllde 10 förrigår,
May 14th, 2009 at 4:54 pm
Louanne
“PLEASE DON’T FEED THE TICKS”: I was a long distance hiker but contracted Lyme disease. ER doc diagnosed 2002 (tick bite/EM rash). Positive serology. ER doc confirmed diagnosis 2007. Wikipedia Lyme page emphasizes ‘no chronic Lyme’ yet describes disseminated Borrelia/late stage Lyme (?!).
See my personal profile here for more about IDSA conflict of interest, etc.
May 17th, 2009 at 8:13 pm
Louanne
Poor child- it’s such a relief to hear that she’s getting better now. I was diagnosed with Lyme Disease a month ago. Increasing my intake of raw foods (certain foods trigger my IBS so I have to choose carefully) helped me too. Taking tiny amounts of raw garlic each week really helped; first 2 days it would cause a bit of a reaction then after that I’d see a slight improvement so raw garlic has definitely been worth it.
May 18th, 2009 at 5:57 pm
Butch
Has anyone considered? that the heavy spraying of Chemtrails, may have contributed to our susceptability to lyme Disease?
May 20th, 2009 at 6:38 pm
Michelle
ok the sour things arent allways that good…
i keep give my daughter spirulina and gojjis…no relapse yet…knock on wood
May 21st, 2009 at 8:08 am
Caroline
Thank you. Also wanted to mention, that when I started drinking lemon juice, it brought back the pain. Stopped and so did the pain. Vinegar also wreaked havoc with my sytem. None of that either for me. Tired of fighting and just must accept the fact, no fruit, no sugars, no goodies that I so love. But getting around is necessary, hoping one day to have an active life again. My best….:)
May 24th, 2009 at 2:49 am
Emery
Im very glad to hear that.
Sounds like you are a fighter
Hope you keep it up and keep feel better !!!
May 26th, 2009 at 1:06 pm
Francis
I wanted to let you know that I am feeling much better. No drugs. No Sugar, No Fruit. I eat only Salmon, Chicken and salads. Drinking only water. I do have an egg for breakfast with a slice of toast. Juicing daily with only veggies.Has anyone else tried this? I am now driving and caring for myself. After five months of being bedridden. Putting this bugger into remission.
May 29th, 2009 at 10:32 pm
Julie
Hello
Thank u so much 4 caring!!!
That makes me happy.
True i think…its the greatest and only way to get well-antibiotics!
How long have you been ill and how long on IV and antbx treatments?
I hope u get better fast !!!
Yes they are so smart and evil the spiros
But we r going 2 win…arent we?
YES WE WILL!!!
Sending u some warm love 2!
June 1st, 2009 at 11:48 am
Christopher
hi O..
Thankyou for replying. I am so glad to hear what you say. She seems to be on good oral drugs. I am on IV & take an oral med too yet I was very strong and fit it is impossible to get better without antiBs.. so I do know how sick your little girl has been. It is an evil disease & a killer.. Aggressive treatment is the ONLY way to get better. My love to you & your daughter.. Lizzie
June 4th, 2009 at 9:57 am
Gerald
Hi!
Yes she had 10 days IV Roceph. in jan-07
21 days of the same in aug-07.
In fact this happend on the 13th day with the IV in august 2007. So it might been a Herx.
Ever since then shes on antbx orally Zithromax and some times Cefuroxime.
She is much better now…thank god!!!
June 7th, 2009 at 10:37 am
Patsy
I do hope your little girl has had aggressive IV antiB treatment now.. if she hasn’t make sure she receives it ASAP. The real danger is that eventually the borrelia will attack the spine & brain & can kill.