VVH-TV News — Lyme Disease: Medical Nightmare (Part 2)
Lyme disease — it has become epidemic on Long Island and much of the New
York Metropolitan Area, indeed across the United States. But as bad as the
illness has become, so has treatment for it — health insurers have
discouraged long-term treatment for what is often a long-term illness.
Suffolk County Long Island Legislator Edward Romaine recently held a
public meeting on Lyme disease.
Eva Haughie, President, Empire State Lyme Disease Association. She has
had Lyme disease for nearly 20 years. Her association is based in Manorville.
Dr. Joseph Burrascano, East Hampton, New York He is a pioneer in the
treatment of Lyme disease. And because of the push by medical insurers to
only cover short-term treatment — two, three or four weeks of antibiotics
– and Dr. Burrascano having developed a protocol for treating the many
people who are not cured in the short-term but have chronic Lyme disease,
he ended up being attacked. But he came through it and is regarded as a
major leader in the field.
Staci Grodin, Co-Founder and President, Turn the Corner Foundation. A
Lyme Diseases victim, her Turn the Corner Foundation has raised over $2
million and funded important Lyme disease research.
Sandy Berenbaum, Licensed Clinical Social Worker, Brewster, New York. She
has specialized with working with those with chronic Lyme disease. Her
accounts were most poignant, and her explanation of why health
insurers balk at providing compensation for long-term treatment most illuminating.
Diane Blanchard, President, Time for Lyme. A former resident of Westhampton, where she and members of her family contracted Lyme disease, she presently lives in Greenwich, Connectcut. Her organization, Time for Lyme, focuses on education and research.
Suffolk County Health Commissioner Dr. Humayan Chaudhry. confirms how Lyme disease has become “endemic”.
Suffolk County Legislator Edward Romaine
New York State Assemblyman Fred W. Thiele, Jr., Sag Harbor, New York who
talks about the bill he has before the New York State Assembly requiring
health insurers to provide compensation for long-term treatment of Lyme
diseases — a measure that has been bottled up in Albany.
Shelter Island Town Supervisor Alfred Kilb, Jr. Shelter Island has long
been a particular hotspot for Lyme disease and Kilb describes Shelter
Islanders he knows with chronic cases of the disease.
(c) Video Voice, Inc. 2007 all rights reserved.
Anne
November 30th, 2008 at 12:45 pm
Bob
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
December 1st, 2008 at 3:15 pm
Christopher
“melikerns” idea to openeyepictures
The movie has brought much needed awareness, however, why don’t you post a list of petitions,a list of political representatives that we can contact. Put the links on your page; this will make it easier for those who barely have the energy to move. Please
December 3rd, 2008 at 9:50 pm
Susy
I read a book years ago, called “Sugar Blues” by William Dufty. An absolute read. He states that during the Bubonic Plague, the rich who could afford sugars, were dropping like flies, the poor country folk who could not, faired well.
December 5th, 2008 at 3:34 am
Louise
Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”
December 7th, 2008 at 10:25 pm
Sherry
Hey texasdar, Beelined here. You tube….”Controlling Lyme Disease.” I shared about my LDN, new experiment. I actually washed my car by hand today. There is something to the LDN. It helps kick in the immune system. And no sugar.
December 9th, 2008 at 12:22 am
Joan
sickfrmtick: You write under the notion antibiotics crossing the BBB are a good thing. I’m not so certain. Tetracycline has been known since at least the 1950′s to induce lupus; doxy causes encephalitis (brain swelling); and minocycline most certainly does. All three cross BBB when amoxicillin doesn’t nearly as much yet is reportedly equally effective in treating Lyme spirochette. Seems that sending antibiotic neuro-toxins across the BBB deep into the brain (stem) could be the cause of symptoms.
December 9th, 2008 at 7:30 pm
Vichelle
Has anyone considered? that the heavy spraying of Chemtrails, may have contributed to our susceptability to Lyme Disease?
December 12th, 2008 at 10:29 pm
Sandy
Don’t waste time with Dr. Donta- he simply does not treat aggresivly enough anymore- I have seen many of his victoms in wheelchairs and on crutches- he uses tetra only an it is not effecient in crossing the bbb. If you are in the northeast, you’re screwed- There is nobody to help us here- you need to travel but in the end you will get better with a doctor atually treating.
December 14th, 2008 at 1:17 pm
Louanne
Doxy crosses the blood brain barrier. Leading Lyme researcher, Sam Donta,(and who appears to be pro-antibiotic) said he isn’t certain Lyme spirochette *ever* crosses the BBB. So why so severe an antibiotic as doxy when amoxicillin is sufficient enough to kill the spirochette (but doesn’t cross the BBB nearly as much as doxy)? MS is described as a disease of the BBB. Connection to antibiotics causing these auto-immune diseases since they’re in experimental stage with sending them across BBB?
December 15th, 2008 at 2:48 pm
Daniel
-continues from my last comment-
any suggestion on what i should try cause im eventualy going to the doctor to get tested but in the meanwhile is ther anything i should try to help
December 17th, 2008 at 3:44 pm
Jane
my doctors say its eczema but ive beend doing reasearch and i think i have lyme bout 2 yrs ago i ppulled a tick of my leg and nothing happend but soon after that ive been getting rashes all over my body i had to leave school cause i couldnt do anything anymore i cant sleep and and when i do its usually over 12 hours and im still tired i live in cots rica and i dont trust the doctors to diagnose me cause they do not do good job the medicne the y give me do not do anything
any suggestions -
December 18th, 2008 at 1:30 am
Tiffany
If anyone knows how I can become involved in Lyme advocacy in the NJ/NY area please send me a message. I want to get involved.
December 19th, 2008 at 2:00 pm
Joan
The story with the mother losing her children is unfucking believable. We need to fight this.
December 20th, 2008 at 9:16 pm
Sandra
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar’s Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of “Raw-Garlic a day.Only thing that helped Texas Dar !
December 22nd, 2008 at 8:38 am
Vichelle
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar’s Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of “Raw-Garlic a day.Only thing that helped Texas Dar !
December 24th, 2008 at 2:10 pm
Janet
Hi everyone,
I am a Lyme patient from Virginia that has written a Lyme brochure with 2 Lyme specialists. Would happy to email anyone a copy.
Elaine
December 24th, 2008 at 3:35 pm
Bethany
32 yrs with lyme, 6 bart and babs. we need to STOP this.
December 26th, 2008 at 12:03 pm
Daniel
Wow! I don’t know how long I have had it, but this is a horrible situation and I am sorry that you have had to deal with this illness. Feel better, and never give up hope
December 28th, 2008 at 2:58 pm
Emery
As a Lyme sufferer here in NorCal, USA I condemn the beings that are manifesting themselves in the Health Insurance Industrial Complexes’ denial of Lyme patients need for chronic medical care. May God strike you with the compassion that you charge people for. Criminals need to be held accountable!!
December 29th, 2008 at 6:31 pm
Samantha
my name is Joseph Ball and i have been suffering with lyme for over 20 yrs
December 31st, 2008 at 10:44 am
Francis
I suffered from Lyme for over eight years. I was fortunate to find a doctor, Tick Borne Disease Center, in NJ who treated me aggressively, three and a half months on intervenious anitbiotic. That was five years ago and I am able to function most days on a normal basis.
It is more expensive for insurance companies to pay long term medical expenses of someone ill for a lifetime. Lyme disease does not go away by itself.
January 1st, 2009 at 9:49 pm
Gerald
bless these people. I am tired of the human race and their greed. Seriously, I have had it. I lost my health insurance, after paying out of pocket for 18 years, because they found a gentic issue with me. I am not sick. I have no recourse. I am beginning to hate people and the fact they will even work for these companies. If they wouldn’t the companies wouldn’t fly
January 4th, 2009 at 4:49 pm
Sandy
Excellent video.
January 5th, 2009 at 11:47 am
Susanna
Thank you for this video, Thanks to Dr. B for all your work w/LD. Although any video re: LD is important, I was disappointed that the experts in this video didn’t talk much about other parts of the country. Md’s out West believe this is an E. Coast Disease. Also important & missed, ALL ticks are carriers,not just Deer Ticks. More education needs to be directed at the West Coast where thousands are sick as well.
January 6th, 2009 at 10:46 am
Annemarie
Thank you for sharing this video on YouTube, VVHTV. Much appreciated!