Lyme disease — it has become epidemic on Long Island and much of the New York Metropolitan Area, indeed across the United States. But as bad as the illness has become, so has treatment for it — health insurers have discouraged long-term treatment for what is often a long-term illness. Suffolk County Long Island Legislator Edward Romaine recently held a public meeting on Lyme disease. Eva Haughie, President, Empire State Lyme Disease Association. She has had Lyme disease for nearly 20 years. Her association is based in Manorville. Dr. Joseph Burrascano, East Hampton, New York He is a pioneer in the treatment of Lyme disease. And because of the push by medical insurers to only cover short-term treatment — two, three or four weeks of antibiotics — and Dr. Burrascano having developed a protocol for treating the many people who are not cured in the short-term but have chronic Lyme disease, he ended up being attacked. But he came through it and is regarded as a major leader in the field. Staci Grodin, Co-Founder and President, Turn the Corner Foundation. A Lyme Diseases victim, her Turn the Corner Foundation has raised over $2 million and funded important Lyme disease research. Sandy Berenbaum, Licensed Clinical Social Worker, Brewster, New York. She has specialized with working with those with chronic Lyme disease. Her accounts were most poignant, and her explanation of why health insurers balk at providing compensation for long-term treatment most illuminating. Diane …
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VVH-TV News — Lyme Disease: Medical Nightmare (Part 2)18 comments to VVH-TV News — Lyme Disease: Medical Nightmare (Part 2)Leave a Reply |
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Why was my comment not posted?
I am from Long Island, originally, but moved to the west coast of Florida in 1977. I went doctor to doctor, when I could, for soooooo many years, being told the old “in your head” routine. They were sooooo mean. By 2007, I was near death, and I finally found the Infectious Disease Doc who saved my life, and has tried to help keep me alive. I was diagnosed with Rocky Mountain Spotted Fever and Typhus. The Lyme was discovered after an MRI showed the brain lesions. (It’s in my head now!)
Excellent post. Thank you. Did you hear the line that nothing will change with insurance coverage until we get corporate money out of campaign contributions? Campaign finance reform is a must, if we want to reclaim our democracy and our health.
I can’t listen to this because it is too upsetting. “The doctor laughed.” It’s time for a revolution against the medical industry in this country. The problem is they have money, power, discourse, and legal protection. If a doctor laughs at you, spit in his or her face.
PLEASE PLEASE PLEASE do internet research on using SEA SALT for curing Lyme. I had it for seven months before I was diagnosed, and doxycycline only made me sicker. I took a shot of about 1/2 teaspoon of RAW SEA SALT in a small amount of water, and in only hours I felt better than I had in months! I continued this maybe three times a day for several days and it ended my Lyme. I take this “shot” every now and then just to be sure it stays gone. IT WORKS. DO RESEARCH. TELL THE PEOPLE!!
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
-continues from my last comment-
any suggestion on what i should try cause im eventualy going to the doctor to get tested but in the meanwhile is ther anything i should try to help
my doctors say its eczema but ive beend doing reasearch and i think i have lyme bout 2 yrs ago i ppulled a tick of my leg and nothing happend but soon after that ive been getting rashes all over my body i had to leave school cause i couldnt do anything anymore i cant sleep and and when i do its usually over 12 hours and im still tired i live in cots rica and i dont trust the doctors to diagnose me cause they do not do good job the medicne the y give me do not do anything
any suggestions -
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar’s Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look back@what ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of “Raw-Garlic a day.Only thing that helped Texas Dar !
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar’s Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look back@what ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of “Raw-Garlic a day.Only thing that helped Texas Dar !
Hi everyone,
I am a Lyme patient from Virginia that has written a Lyme brochure with 2 Lyme specialists. Would happy to email anyone a copy.
Elaine
32 yrs with lyme, 6 bart and babs. we need to STOP this.
As a Lyme sufferer here in NorCal, USA I condemn the beings that are manifesting themselves in the Health Insurance Industrial Complexes’ denial of Lyme patients need for chronic medical care. May God strike you with the compassion that you charge people for. Criminals need to be held accountable!!
bless these people. I am tired of the human race and their greed. Seriously, I have had it. I lost my health insurance, after paying out of pocket for 18 years, because they found a gentic issue with me. I am not sick. I have no recourse. I am beginning to hate people and the fact they will even work for these companies. If they wouldn’t the companies wouldn’t fly
Excellent video.
Thank you for this video, Thanks to Dr. B for all your work w/LD. Although any video re: LD is important, I was disappointed that the experts in this video didn’t talk much about other parts of the country. Md’s out West believe this is an E. Coast Disease. Also important & missed, ALL ticks are carriers,not just Deer Ticks. More education needs to be directed at the West Coast where thousands are sick as well.
Thank you for sharing this video on YouTube, VVHTV. Much appreciated!
Wow, great, great work folks.
Thank you for this excellent presentation of the truth an the facts.