VVH-TV News — Lyme Disease: Medical Nightmare (Part 1)
Lyme disease — it has become epidemic on Long Island and much of the New
York Metropolitan Area, indeed across the United States. But as bad as the
illness has become, so has treatment for it — health insurers have
discouraged long-term treatment for what is often a long-term illness.
Suffolk County Long Island Legislator Edward Romaine recently held a
public meeting on Lyme disease.
Eva Haughie, President, Empire State Lyme Disease Association. She has
had Lyme disease for nearly 20 years. Her association is based in Manorville.
Dr. Joseph Burrascano, East Hampton, New York He is a pioneer in the
treatment of Lyme disease. And because of the push by medical insurers to
only cover short-term treatment — two, three or four weeks of antibiotics
– and Dr. Burrascano having developed a protocol for treating the many
people who are not cured in the short-term but have chronic Lyme disease,
he ended up being attacked. But he came through it and is regarded as a
major leader in the field.
Staci Grodin, Co-Founder and President, Turn the Corner Foundation. A
Lyme Diseases victim, her Turn the Corner Foundation has raised over $2
million and funded important Lyme disease research.
Sandy Berenbaum, Licensed Clinical Social Worker, Brewster, New York. She
has specialized with working with those with chronic Lyme disease. Her
accounts were most poignant, and her explanation of why health
insurers balk at providing compensation for long-term treatment most illuminating.
Diane Blanchard, President, Time for Lyme. A former resident of Westhampton, where she and members of her family contracted Lyme disease, she presently lives in Greenwich, Connectcut. Her organization, Time for Lyme, focuses on education and research.
Suffolk County Health Commissioner Dr. Humayan Chaudhry. confirms how Lyme disease has become “endemic”.
Suffolk County Legislator Edward Romaine
New York State Assemblyman Fred W. Thiele, Jr., Sag Harbor, New York who
talks about the bill he has before the New York State Assembly requiring
health insurers to provide compensation for long-term treatment of Lyme
diseases — a measure that has been bottled up in Albany.
Shelter Island Town Supervisor Alfred Kilb, Jr. Shelter Island has long
been a particular hotspot for Lyme disease and Kilb describes Shelter
Islanders he knows with chronic cases of the disease.
(c) Video Voice, Inc. 2007 all rights reserved.
October 4th, 2008 at 3:13 am
Anne
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
October 4th, 2008 at 8:55 pm
Sandy
“melikerns” idea to openeyepictures
The movie has brought much needed awareness, however, why don’t you post a list of petitions,a list of political representatives that we can contact. Put the links on your page; this will make it easier for those who barely have the energy to move. Please
October 5th, 2008 at 1:28 pm
Joanne
Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”
October 8th, 2008 at 11:20 am
Chase
This Special Report was originally broadcast on September 8, 2007 on VVH-TV.
October 11th, 2008 at 12:18 am
Cameron
Anybody know how old this video is?
October 13th, 2008 at 5:47 am
Caroline
The insurance companies just go by the guidelines of the CDC…you MUST read my first post (here)!!!
October 13th, 2008 at 8:18 am
Sherry
When Lyme becomes chronic, it RUINS people/families PHYSICALLY, EMOTIONALLY, FINANCIALLY, & SOCIALLY (since others DON’T know ALL THE FACTS)! The public & doctors are NOT being taught THE WHOLE TRUTH re. Lyme! The CDC prints BOGUS guidelines re. the testing of Lyme, due to the BIG $ that is made off the CHRONICALLY ILL (drug companies, hospitals, etc. are all in cohoots w/the CDC)! It’s VITAL to know that IF PROPERLY diagnosed & treated EARLY ENOUGH, it WON’T BECOME CHRONIC &/OR WORSEN
October 14th, 2008 at 1:23 pm
Nancy
criminal insurance companies. In ten years when EVERYONE has lyme disease and NOBODY can go to work because of the crippling effects of Lyme, they will then see the long term effects of NOT treating this disease. I guess this is the end of the USA as we knew it? Hard to be on top when your in bed 24hr day.
October 16th, 2008 at 7:46 am
Patsy
I am not satisfied about this interview.
October 19th, 2008 at 3:43 pm
Annemarie
Don’t forget the DEET. So apparently Ben Ruset isn’t the only one who thinks you should buy something if you’re going to steal napkins and use the bathroom. No more wendy’s for you. It’ll probably be better for your heart this way.
October 21st, 2008 at 11:32 pm
Annemarie
“LLMD”‘s won’t take indigent patients, so I’m told. ILADS Dr. Martz was featured on ABC News in Colorado Springs a few years ago, said he was diagnosed w/ALS but figured it was Lymes, cured himself with 6 months IV ceftriaxone. I went to his clinic but was told they cannot afford to take indigent (poor) patients, that they don’t even take insurance. Must be cash. ABC News wouldn’t do a story on me though. A homeless man w/Lymes denied IV abx all over the country.
October 24th, 2008 at 10:46 am
Emery
I’ve still to view the entire clip but have saved it to my favs as the interview is so good. All I will say is if you are sceptical about lyme disease then I pray you never get bitten by an infected tick because the infection is horrific that results.. & YES once in the central nervous system & brain you most certainly DO need very longterm powerful IV antiB drugs in combination with oral to effect a cure. It one day will be recognized as one of the most devastating diseases known.
October 27th, 2008 at 4:40 am
Sandra
Please see my favorites and the Dennis Kucinich video where he tells Hilary, Obama, et. al, how he was the only one with a specific universal healthcare plan, and that they will only perpetuate an evil system.
October 27th, 2008 at 10:07 am
Bethany
Doxy crosses the blood brain barrier. Leading Lyme researcher, Sam Donta,(and who appears to be pro-antibiotic) said he isn’t certain Lyme spirochette *ever* crosses the BBB. So why so severe an antibiotic as doxy when amoxicillin is sufficient enough to kill the spirochette (but doesn’t cross the BBB nearly as much as doxy)? MS is described as a disease of the BBB. Connection to antibiotics causing these auto-immune diseases since they’re in experimental stage with sending them across BBB?
October 28th, 2008 at 3:21 am
Emery
Its why I avoid the trails in summer. If I do go hiking, I cover myself and spray my clothes with permethrin, which will kill the ticks on contact and the effect lasts for about a month or 3-4 washes.
October 28th, 2008 at 6:52 pm
Violette
Would love the brochure.
Will send postage and handling if needed.
Can you send me more than a couple?
May I make copies giving credit of course?
My mailing address:
T. Seeche
P.O. Box 320302
San Francisco, CA 94132
THANKS!
October 28th, 2008 at 9:52 pm
Marilynne
wrote a very comprehensive Lyme brochure with the help of 2 Lyme specialists. will be happy to email anyone a copy.
Elaine
October 30th, 2008 at 10:17 am
Louanne
The insurance companies just go by the guidelines of the CDC…you MUST read my first post (here)!!!
October 31st, 2008 at 8:25 pm
Marilynne
VERY URGENT!!!: PLEASE ATTEND THEE MOST IMPORTANT LYME PROTEST EVER (for more info, log onto the following website)…then PASS IT ON ASAP!!! w w w (dot)lymerights(dot)org
November 1st, 2008 at 3:12 am
Dutch
When Lyme becomes chronic, it RUINS people/families PHYSICALLY, EMOTIONALLY, FINANCIALLY, & SOCIALLY (since others DON’T know ALL THE FACTS)! The public & doctors are NOT being taught THE WHOLE TRUTH re. Lyme! The CDC prints BOGUS guidelines re. the testing of Lyme, due to the BIG $ that is made off the CHRONICALLY ILL (drug companies, hospitals, etc. are all in cohoots w/the CDC)! It’s VITAL to know that IF PROPERLY diagnosed & treated EARLY ENOUGH, it WON’T BECOME CHRONIC &/OR WORSEN!
November 2nd, 2008 at 6:24 pm
Mary
Dr Burascano, I met him at a Lyme conference in Canada in the early 90′s. If it wasn’t for compassionate brave Doctors like him, I don’t know where my Daughter would be now, instead she is 24 years old, healthy and attending College. Thank you Joe, You are a TRUE medical HERO…..
November 5th, 2008 at 9:26 pm
Janet
As corny as it sounds, Dr.Burrascano is a true hero. I avoided debilitating Lyme because of an ILADS doctor. God bless these doctors; they are literally changing the course of history with their life-saving treatment of thousands of people.
November 8th, 2008 at 10:49 am
Chase
l have a friend who has had Lyme in South Africa.Please contact us to share.
November 8th, 2008 at 6:05 pm
Jane
Burrascano is a real hero
November 8th, 2008 at 11:43 pm
Louanne
Thankyou Dr. Burrascano for all of your dedicated research on Lyme Disease. I actually gave my primary doctor your treatment monogram with testing and treatment recommedations and she is now a believer in Lyme Disease and support my diagnosis & treatment that the ILADS physician has recommended. Thank you to any and all associations dedicated to the further education, support, and funds for ongoing research of Lyme Disease and all co-infections.