Voices of Lyme Disease – Messages to Rep. Frank Pallone
tvcee15 asked:
Check out: http://lymerights.org and don't forget to sign up on their mailing list! It's important that we get together and get organized, now more than ever. On May 7th, Lyme patients and constituents of Congressman Frank Pallone (D-NJ) protest outside of his offices in Long Branch. They want Pallone to schedule the Lyme Disease Research Bill, HR 741. So far, Pallone is stalling and refusing to schedule the Bill, capitulating to lobbyists and monied interest. Meanwhile Lyme is becoming an …
Tiffany
April 6th, 2009 at 10:04 am
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !
God Bless,
April 8th, 2009 at 4:56 am
Chase
Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”
April 10th, 2009 at 5:12 pm
Marilynne
I believe Representative Pallone is very aware of this issue considering one of his own family once had a case of lyme disease and I cannot believe some rude commentary under this video. Representative Pallone has done so much for this community. Still I commend you for fighting for what you believe in and I believe this is a very well done video.
April 11th, 2009 at 1:49 pm
Cam
Wrote an informative Lyme brochure with the help of 2 Lyme specialists…will email to anyone.
April 12th, 2009 at 6:18 am
Louise
Let’s get Frank Pallone out of office. What a joke of a person. Even if he passes this bill, I will fight every chance to get rid of this douche. He obviously has his hand out and its not to shake hands. Vote this guy OUT OUT OUT!!!
April 13th, 2009 at 12:03 am
Louanne
the lack of compassion in politics isn’t surprising, but the lack of compassion in the medical industry is shocking
April 15th, 2009 at 1:46 am
Emery
unfortunatly for us, it’s politics as usual wall street > national health crisis dusty bill-there are thousands walking around with this disease and have no idea.I would be curious which doctors he mentioned who personally live near him about dangerous antibiotics killing people- Names please- NAMES- WHO!! Their the IDSA not any actual treating physicians- IS HE BEING PAID OFF…. it’s they only thing that makes sense…Lies, lies and more lies. And the band continues to play on….
April 15th, 2009 at 7:52 am
Dan
GREAT film!! We appreciate your work! The mainstream media prints nothing but lies about Lyme– and Blumenthal has already proven that the current IDSA guidelines were prepared under a dark cloud of conflict of interest with collusion among “inbred” committee members with questionable financial connections. Our govt spends $22 BILLION on developing biowarfare agents at Plum Island that are similar to Lyme, and yet Pallone cant find time to schedule a puny bill for treatment research? SHAME.
April 15th, 2009 at 1:34 pm
Anne
I sure hope he is seeing this video. Rep. Pallone, if you are seeing this, please schedule this bill. It is immoral to ignore thousands and thousands of people in favor of big pharma and big establishment money. I know you need to fund your re-election campaign and all, but give me a break – you are supposedly part of a representative government, right? The people’s wishes are clear, Rep. Pallone, why aren’t you listening?
April 18th, 2009 at 10:06 am
Annemarie
Great video. It’s so interesting to me that most people I speak with either know someone who has the disease or even have a family member with it. I think that sadly, what we are experience is the government mishandling a huge epidemic, just like they did with the early AIDS crisis 20 years ago. If they had acted sooner then, so many lives could have been spared. But for whatever reason, our government just does not act quickly or effectively enough on emerging diseases. And the band plays on…
April 20th, 2009 at 5:27 pm
Louanne
I am a concerned constituent, and I wish to alert you that this is an issue that affects us ALL- Most people have heard of Lyme, and many know someone who has it. This disease is disabling and debilitating the most active members of our community, our children–our future. The health of our entire community is at risk. Research has proven earlier diagnosis and treatment provide a better chance for complete recovery. WHY are you blocking further research, and possibly, eventually a cure?
April 23rd, 2009 at 7:35 pm
Sherri
Seriously, enough is enough. Representative government means that the people’s wishes are represented by their elected officials, NOT the interests of giant medical societies with millions of dollars to hire lobbyists. Thousands and thousands of people have called you and asked for your help. What more do you need before you’ll schedule this bill? Do we really have to park a truck full of money on your lawn before you’ll listen?
April 25th, 2009 at 8:44 pm
Cameron
Rep. Pallone – Lyme patients in your district have given you copies of the new book “Cure Unknown: Inside the Lyme Epidemic” and new film “Under Our Skin”. These CLEARLY spell out the self-interest and lies of the IDSA leaders as they allow this epidemic to rage on unchecked. Rep. Pallone we have a national health crisis here – how can you justify siding with the IDSA? How many more people will become incurably ill on YOUR watch as House Health chair?
April 28th, 2009 at 1:03 am
Susy
And then you have to remember, the IDSA, the people opposing this bill, have already been busted by the Attorney General of Connecticut for serious malfeasance and conflicts of interest around Lyme treatment. Doesn’t that tell you something, Congressman? These guys are corrupt and don’t want this bill to see the light because they don’t want the truth about how badly they’ve mishandled this disease to come out. Please, Rep. Pallone, side with the people, not the money, on this issue.
May 1st, 2009 at 7:33 am
Bethany
I understand that he’s getting pressure from “the other side” to squash this bill. But wouldn’t an intelligent person have to ask themselves what possible motivation would a medical society have to OPPOSE a bill for more medical research? What possible reason would they have to oppose this unless they were hiding something? Honestly, Mr. Pallone, what legitimate reason could they have? None. They are clearly hiding somehting.
May 1st, 2009 at 3:16 pm
Patsy
Very compelling and well done. Lyme Disease is no joke and people are contracting it with increasing numbers every year. These people are truly ill and the U.S. healthcare system is not helping those who need it the most. Let’s get politicians into action!