Jenna’s Lyme Video Blog
Video blog about chronic and/or neuro-Lyme
25 Responses to “The Ugly truth About Lyme Disease”
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July 27th, 2008 at 1:59 am
Tom
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
July 29th, 2008 at 3:16 am
Annemarie
“melikerns” idea to openeyepictures
The movie has brought much needed awareness, however, why don’t you post a list of petitions,a list of political representatives that we can contact. Put the links on your page; this will make it easier for those who barely have the energy to move. Please
August 1st, 2008 at 8:27 am
Anne
I read a book years ago, called “Sugar Blues” by William Dufty. An absolute read. He states that during the Bubonic Plague, the rich who could afford sugars, were dropping like flies, the poor country folk who could not, faired well.
August 4th, 2008 at 11:31 am
Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”
August 7th, 2008 at 4:11 am
Tiffany
I have been taking LDN now, for about a week. This is an amazing helper, and I have not experienced any super herxing. So not to repeat myself, You tube…”Controlling Lyme Disease,” where I hopped onto Kyle’s page. I think you will find it to be helpful. $40.00 for my prescription. Which will last quite sometime.
August 10th, 2008 at 4:50 am
Joanne
I was like you, but now I have a very good lyme doctor and I’ve recently gotten much better. It’s amazing. I was very sick for seven and a half years before diagnosis. I believe I contracted lyme in’74. I came down with late stage in ’90. It has been a slow but steady improvement for all these years that I’ve been medicated. Even high doses of inexpensive meds helped. Amoxicillin and doxycycline. I hope you continue to seek treatment!
August 13th, 2008 at 4:30 pm
Cam
This is true….. Lyme disease sucks.
It’s almost killed me. God bless you.
August 15th, 2008 at 2:53 am
lewis
I am 46 years old and have had Lyme disease for at least 10 years. I went from Dr. to Dr. and they were trying to diagnose me with MS. Finally all I could do was Quit my job and try to get on disability. I simply could not function anymore at work. I decided to try a local homeopath. I am not cured, but I am at least 90% better!!! I can actually skate again. I do still have a few symptoms, but the worst are gone. I will take the homeopathic remedies again after the first of the year. We’ll see
August 15th, 2008 at 1:35 pm
Annemarie
I’m sorry. I am learning just how devasting this is. It is criminal that this is happening. I didn’t mean any harm. I’m sorry again.
August 18th, 2008 at 9:27 pm
lewis
leave him alone. he is obviously in pain my mom has had it forever… shes 50 and still not cured.
August 21st, 2008 at 9:01 am
Nancy
Some people never give up. I can’t imagine having it for as long as you have. I am hurting too and I’ve only had it for four yrs., but please…think before you say something like that. I hope I can prove you wrong, and we do find a cure. You are going to be one of the first I let know about it, then you’re going to eat your words, while your smiling and getting better. M.
August 23rd, 2008 at 5:11 am
Violet
Your comment quote, “your going to be with it for the rest of your life.” How can you say that, you don’t know that. Young kids who are suffering from this are watching these videos.
August 24th, 2008 at 7:09 am
Scott
(Continued~Last time) It’s a very big deal for the Lyme community that Dr. Oz featured this topic on his show because he is well respected and has a lot of influence in the medical community as well as the general public.Dr. Mehmet Oz is professor and vice chairman of surgery at Columbia University in New York City, director of the Cardiovascular Institute and founder and director for the Complementary Medicine Program at NewYork-Presbyterian Hosp.
August 24th, 2008 at 12:44 pm
Susy
(Continued) Plus Dr. Oz saidhe wants to hear from people who are suffering with Lyme.” He gives an email address on the radio so we want to encourage everyone to writeto him.Dr. Mehmet Oz said “his entire family couldn’t stop watching Under Our Skin”.Dr. Oz interviewed filmmaker Andy Abrahams Wilson along with medical reporter Kathy Fowler for nearly an hour about the complications& controversies of Lyme disease.
August 25th, 2008 at 11:47 pm
Kevin
I am LymieLucy & BalletMom34 I set up2 in error~memory issues,concentration vision problems ~I will never send another message But in my continued efforts to help Lymies ~I find it very hopeful:JUST RELEASED FROM ON THE MARC MEDIA: Under Our Skin will be featured on Dr. Oz’s radio show on Oprah and Friends XM Radio November 26. It airs 3 times during that day at 1 a.m. 7 a.m. and 6 p.m.You can listen to it even if you don’t have Satellite Radio see below: (continued)
August 29th, 2008 at 9:10 am
Vichelle
When Sam Donta, leading Lyme researcher has stated he doesn’t believe Lyme EVER crosses the BBB, why isn’t amoxicllin–far less toxic than doxycycline–given? Why send neuro-toxins deep into the brain (stem) unnecessarily?
August 31st, 2008 at 11:50 am
lewis
The Christian talk here was probably manufactured controversy. Distracts from the real issue which is that doxycycline (used to treat Lyme) may induce lupus [not to be given to children under 7 since it causes brain swelling/encephalitis]. That it is not an ongoing bacterial infection we are fighting but neurotoxins deliberately sent across the blood brain barrier inducing over-excitability of the neuro-transmitters; inflammation/encephalopathy; lesions; leuko-encephalitis; myocarditis; etc.
September 3rd, 2008 at 2:12 am
Carlo
incite hatred against Christians deliberately.
Step back , Seem many think praying gonna take it away, hello , i grew up in the faith so stop babbling. Don’t turn this issues into your religionists stage. For there are many ppl of many faiths that find your comments offensive and suffer from this disease.
September 4th, 2008 at 9:47 am
Carlo
Dont force you religous beleif’s on people, do i force my beleif that there is no Jesus on to you ? If you ask me, the people who beleive in Heaven and Jesus are just greedy, what ever the force is that brought Earth here is, wouldn’t they be saying “greedy bastards…. we give them a gift and journey of life and they want more ??? !!! It’s just a pity my journey has been devastating. So go preach that to your cat and stop forcing your religous belief’s !!!
September 6th, 2008 at 1:47 pm
Vichelle
I felt like you did, but I found a great Lyme doctor. I’ve been medicated for 11 years now and I’m vastly better than I was. I can think again, and I have gained feeling in my hands and feet, and I am stronger. I was Alzheimer like before, and on my worst day, I didn’t know to stop or go at a red light.
September 9th, 2008 at 12:31 am
Cam
my fiance has chronic lyme.. what all does your daily diet consist of? do you exercise regularly? smoke, drink? she has been on antibiotics for a year and a half now and it still hasnt gone away! we are lost at what to do! feel free to email me if you get the chance. thank you.
September 10th, 2008 at 5:37 am
Annemarie
Has anyone considered? that the heavy spraying of Chemtrails, may have contributed to our susceptability to Lyme Disease?
September 12th, 2008 at 7:35 pm
Louanne
I don’t think anyone has said anything about suicide on here. But as for my being homeless, and being prayed for, that sounds like the sort of people that incite hatred against Christians deliberately. “Can we pray for you?”, while refusing to help, if only a tent in yard so as not to be arrested for trespass (see Book of Acts/socialism). 1John 3:16-17 –let us love in deed and in truth not in just word only, etc.
September 15th, 2008 at 1:27 am
Dutch
granger 456
I must have the same strain because although I don’t walk like an MS patient and don’t need my cane or walker I have terrible memory issues and cognitive problems that are driving me crazy!
September 18th, 2008 at 9:37 am
Tiffany
I am Lymie Lucy, I have 2 accounts on here. I am a little familiar with Hydrocephephalus because I had my Mother tested for it. IV Anti-biotic therapy does work, I had an IV 2 different times for 6 months each with ceftin.
Honestly, everyone needs Jesus. I am really sorry that you’re homeless. I can’t even imagine what that must be like. I’ll pray for you.