PT 10-Losing my brain—Lyme disease
shandymonte asked:
SO my jaw/tooth is in some serious pain, dont know why??? And I have a cool ass pharmacist!! Went to Dentist today.. they say it’s an infection and I need an oral surgeon because my wisdom teeth are growing in ALL messed up.
Violet
September 17th, 2009 at 8:59 pm
lewis
I swear i have all the same symptoms you HAVE!!!!!!!!!!!!!!!!!!! My parents dont believe me at all. They thought i was crazy until the neurologist said that it sounded just like lyme disease. I went 6 months with lyme disease undiagnosed. I felt Depressed and i was scared for my life even though i looked fine.
I also had jaw pain at one point and heart problems. I hope you get better lyme disease does take a while to cure.
September 19th, 2009 at 6:08 pm
Louise
Are you getting like “fluttering sensations all over your body? I have it also.
September 20th, 2009 at 3:38 am
Louise
I also have lyme and have had every symptom you descibe and more after 7 months of IV rocefin I feel much better, but the symptoms haven’t all gone away.
I agree with what another person said. Stay away from ALL sugar. From what I read this disease is fueled by sugar. Read the foods label before eating it and you will be suprised on how much sugar you eat everyday.
September 20th, 2009 at 9:36 am
Franny
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
September 21st, 2009 at 1:35 am
Marilynne
Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”
September 22nd, 2009 at 11:56 am
Christopher
Of course this Video Is several months old but 2 or the best Colloidal Silver Is MeSo Silver & Invive protein Silver because of the expensive many People make Their own. I Am still learning about Rife & Clark zapper. For the tooth problem take 2 or 3 liquid Advil & hold Listerine In Your mouth 20 minutes or so. Also see what I wrote at Jamie’s January 2009 up date.
September 25th, 2009 at 11:17 pm
Janet
where do you live? I have an alternative dr who specializes in lyme and has cured people. I am seeing him now. He is not expensive.
September 26th, 2009 at 1:37 pm
Nancy
where do you live? I have an alternative dr who specializes in lyme and has cured people. I am seeing him now. He is not expensive.
September 26th, 2009 at 3:07 pm
Patsy
From everything I’ve heard in the lyme community, the only reasonably reliable lyme tests are those done by Igenix Labs. I would start with finding a lyme literate doctor in your area through one of the lyme associations. There are also several lyme forums on the internet that you may find helpful. Blessings.
September 28th, 2009 at 3:21 pm
Franny
FYI i’ve found that canadian online pharmacies charge a fraction of what you’d pay in the States
September 30th, 2009 at 9:32 am
Sherry
Hi. My name is lindsey and i feel for you!!! I was researching because i dont know whats wrong with me. I feel like everything is wrong with me. Everyone tells me i’m crazy. But the more I research the more I am confused. The only time I remember a rash like the one they describe was years ago. I have had two kids since then. They are being evaluated for autism. Then I saw something saying that autism mimicks lyme or vice versa. And testing for lyme is complicated , i dont know where to start.
October 2nd, 2009 at 3:03 am
Butch
i have infection in my upper jaw and it hurts like hell but i think it´s that i have a cold to that have cused it
October 4th, 2009 at 2:13 pm
Franny
NO FRUIT! NO SUGAR OF ANY KIND! After five months of being bedridden, unable to tolerate any drugs (sensitive) I am now able to drive. I juice a huge batch of veggies and freeze in portions. Drinking it daily. I eat only Salmon, Chicken and sald. Have an egg for breakfast with toast. Only water as well. Getting results. Nothing else worked. SUGAR IS THE BIGGEST KILLER HERE! FRUIT IS SUGAR! Please try this. MY BEST!
October 7th, 2009 at 1:08 am
Christopher
Hello everyone….wrote a very informative Lyme brochure with the help of 2 Lyme specialists…will email to anyone. Remember…there is a light at the end of the tunnel…..
Elaine in VA
October 8th, 2009 at 3:58 am
Franny
Anybody hear of a herbal called Venus Flytrap thats supposed to help with lyme?. The homeopathic venus flytrap is called Drosera. Try a good homeopath who will work with your doctor.
October 11th, 2009 at 10:21 am
Louanne
I’ve had trouble thinking of words, too (it’s a lyme symptom), and also have had the jaw pain, especially when herx-ing…
we feel your pain!
October 13th, 2009 at 6:13 pm
Susy
Try not to get too scared about forgetting words and stuff…it could be the meds. Hang in there.
October 16th, 2009 at 9:45 am
lewis
Yah, I saw your post about the pharmacist and steam starting blowin’ outta my ears. I retract my “earned his wings statement” and replace it with “his horns have grown larger.” I’m So very sorry you were treated that way by those scheisters. They deserve to be reported to the States Pharmacological Regulatory place or whoever oversees what they do in that regard. If you lived closer, I’d go over their myself and give him a piece a my mind for you. Sending you hugs, my friend.xoxoxoxoxo
October 18th, 2009 at 4:38 am
Janet
I want to say that this COOL Pharmacist ended up SCREWING me over… BAD PHARMACIST!!
October 19th, 2009 at 4:21 pm
Mary
YouTube hates me (LOL) but you KNOW how I feel. (Thank you MySpace.)
I love you.
I’m proud of you!
I PRAY that your jaw/teeth feel well soon!!!!!!!
DAMMIT!
I just want my girl to feel well!!!!!!!!!!!!!!!!!!!!!!
True story!
The end!
♥
October 21st, 2009 at 3:16 am
Clancy
Sounds like your pharmacist has earned his wings in heaven. What a gem! I’m so sorry to see you in so much pain, dearheart. Wish I lived closer so I could shuffle over (don’t all Lymies shuffle rather than walk? lol) and bring you some homemade pureed soup. I can totally relate to your descriptions about being on the sofa and unable to do anything else. I hope you can get relief soon.
October 22nd, 2009 at 10:35 am
Jane
Hi Shandy,
I’ve learned a lot from your videos and all the responses. I have had a similar history to yours but I’ve been sick for 10 + years (undiagnosed) and life can be unbearable for so long.
One quick ?. How do you tolerate the noise in your background? I am sooo sound/light sensitive that I think I’d scream with pain with so much sound around me.(I know I have kids too, it’s hard to keep the house quiet). Hang in there and wishing you good health.
October 22nd, 2009 at 5:35 pm
Joanne
Hi Shandy so sorry you are suffering – it sucks when you can’t eat. I have had terrible problems with wisdom teeth – infections etc and having them taken out was quite easy – two in the denstist chair and two in hospital. It made a huge difference – i had suffered for years and it was such a relief to get rid of them. Before that i used to look like a hamster!!!!!! Hope you are feeling better its not a good way to diet.
October 26th, 2009 at 2:21 am
Sandy
…continued…
I totally forgot what I was going to say on this continued message. LOL.
Jaw pain and tooth pain can be lyme. I have jaw pain once in a while. I don’t really have much tooth pain but I do have tooth problems that are unexplainable. Like my teeth feel loose and when I go to feel them with my finger to see if they are loose, they’ll click, etc. It’s quite disturbing, but a dentist can’t find anything wrong with my gums or teeth. So I think it may be lyme causing it.
October 28th, 2009 at 11:47 am
Violette
I have the muscle twitches a LOT too. My eye (constantly), my jaw, my thigh, etc. It’s annoying!
Where did you get that lime green bracelet and is it for lyme? Does it say lyme on it, etc.? If so, where did you get it???? I’ve been trying to find a place online or somewhere that has lyme bracelets, but can’t find a place.
I have horrible word searching too. I’ll switch words around or pronounce one wrong, etc. And it sucks because I have an English degree…
…continued…