Jenna’s Lyme Video Blog

Jenna’s Lyme Video Blog

Video blog about chronic and/or neuro-Lyme

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My Lyme Disease Story Part One

barbyfirefly asked:


This is my story with Lyme Disease so far. I just got diagnosed on January 8th. I have been sick for two years so it is a relief to finally have a diagnosis. Just wanted to share my story.

Chris

16 Responses to “My Lyme Disease Story Part One”

  1. 1
    barbyfirefly:

    Violet

    Thank you.

  2. 2
    Soulreaver11111:

    Dutch

    wow, how scary. hope u get well

  3. 3
    Prethenie:

    Dan

    Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”

  4. 4
    barbyfirefly:

    Joanne

    I am glad to hear that you are doing better. I will look more deeply into this Rife machine I keep hearing about.

  5. 5
    barbyfirefly:

    Cam

    Thank you, Joe. :-)

  6. 6
    jocus20:

    Gerald

    Hey Barby, Dont let yourself get discouraged. Your a strong girl and can get well. You know im always here for you.

  7. 7
    athenagirl82:

    Chris

    It is slow going because I’d had it for so long before treating, but it is going very well overall, I’m getting better. I mainly treat with herbal antibiotics from the Steven Buhner book and the Rife machine because they reach more thoroughly/deeply than the antibiotics can so you won’t have relapses once off antibiotics. The herxing is no fun, but I always feel better afterwards. You just have to keep with it. It may take a few years, but you’ll get better.

  8. 8
    barbyfirefly:

    Dutch

    Crap… that response was for you.

  9. 9
    barbyfirefly:

    Tiffany

    I guess that could be whats wrong with my feet. They just get freezing cold sometimes. It was one of the worst symptoms in the beginning though. I think it’s just part of lyme or the co-infections. A lot of people have that. The splotchy rash is on my arms and legs. I have no idea what that is. Hopefully my doctor can tell me. It hasn’t gone away.

    So how is your treatment going?

  10. 10
    barbyfirefly:

    Mary

    I am happy you found something that works.

  11. 11
    barbyfirefly:

    Sherri

    I will be seeing a LLMD soon. He is the one that diagnosed me. He recommended The Lyme Disease Solution so I will be reading that for sure. Thank you for the recommendations. How is your treatment going so far?

  12. 12
    PsycoliciousMe:

    Sandra

    Hey Barby.
    I’m so sorry that you have to go through this. It’s a horrible horrible disease and it’s so great you actually have a clinical diagnosis! I’ve had alot of your symptoms too like the temporary blindness(both eyes, very scary), nerve pain, and the coldness in your feet and hands with the splotching. That is actually called raynaud’s phenomenon. I hope that your doing well!
    Love and Energies.
    Kayla

  13. 13
    athenagirl82:

    Louanne

    Also joining the Yahoo group lyme-and-rife is very helpful.I couldn’t use antibiotics to treat my lyme, I was too sick. I used Buhner’s herbal lyme antibiotic protocol for 6 months to decrease the load of Lyme spirochetes and then started using a GB4000 Rife machine to continue killing the lyme. It has been the biggest help in my recovery, plus the sea salt and vitamin C protocol. Antibiotics with a GB4000 or Doug coil machine work best for most. Feel better!

  14. 14
    athenagirl82:

    Sandra

    I’ve been treating my Lyme for 2 1/2 years, I had it misdiagnosed for about 4. I had all of your symptoms and worse. Are you seeing a Lyme literate doctor (LLMD) or regular MD? You should get the books: Healing Lyme by Steven Buhner, Top 10 Lyme Disease Treatments by Bryan Rosner, Lyme Disease and Rife Machines by Bryan Rosner, The Lyme Disease Solution by Kenneth Singleton, MD.

  15. 15
    barbyfirefly:

    Cameron

    Yeah, I saw your video. My story as far as that goes is very close to yours. Sakari came home covered in ticks. My apartment was infested. They were crawling up my walls and in my bed. So nasty! Took a couple months to get rid of them all. I am sorry you have been sick for so long.

  16. 16
    disturbedme5:

    Nancy

    Hi, Barby!

    It’s good to see you made a video. I have some of the symptoms you listed at the end of your video. I too have the weird losing hearing in one ear for a minute or two and then it comes back.

    I also got lyme disease from my dog. My family took her in and she ended up having at least a hundred ticks on her which then infested our house. I only ever saw one on me attached in my arm, but I’m sure there were more that I never noticed or was able to see, like on my back side, etc.

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