My Lyme disease Recovery (part 1): the background
LymeOrNot asked:
I would like to recover completely from Lyme disease, Meniere's disease, Lupus, MS, Morgellons, Bartonella…and other co-infections; however, the physicians seemed to have different goals… …
Caroline
May 28th, 2009 at 2:55 pm
Tom
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
May 31st, 2009 at 6:30 am
Scott
Thanks. We need international support to deal with international Lyme disease and co-infections….:-)
June 1st, 2009 at 7:00 pm
Daniel
I am supporting your theory. I am a microbiologist, a researcher.
June 2nd, 2009 at 10:32 am
Annemarie
I know about what yr going threw. I was bit in 1992, then 1996, and now get to stay home 24-7, becouse I cant do anything without colasping. Google Dar’s Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times in 1 year. Its on Lyme-Net. Dont look ya did, see what ya can do, it could be worse,like me. Prayers can only help. Were alone out here,and can,hoping anybody will hear us. Texas Dar !
June 2nd, 2009 at 10:53 am
Cam
Thank you for contacting me. I sub’d and will write to you more… I need this info and help. Much appreciated.
June 3rd, 2009 at 6:05 am
Patti
All my WBs were negative,,., Ive had over 15 of them done…lol.
But get this.. they were all different too and 3 tests were even done in the same day..(dont ask…lol) for some reason, we cannot count on antibody tests, not from crapola labs anyway?
And strangely.. always the 41 band is present.. on everyone Ive ever talked to.. think it represents flagella.
I went for the gold..multiplex PCR with reverse southern blot from Igenex..and.. Bowen.. and others I told you.
June 5th, 2009 at 12:24 pm
Dan
Shandy.. you no longer have a Lyme Dr now? 6 months is no way long enough to notice.. do you need a Lyme Dr? I can get my list for you.
But you know you will have to travel.. let me know..
June 8th, 2009 at 6:51 pm
Tom
CONT— when I ran out of money my lyme doc when running on me… sad state of affairs… It only took 14 months after my daughter was born to be dx;d ONLy because of my own research. I was normal, healthy, fit, active and full of life before I got pregnant… ALL of a sudden I get pregnant and now I am severely Ill since my 3rd trimester??? Makes NO sense and NO one can give me an answer… been looking and searching high and low. I want my life back and have started doing natural treatments.
June 11th, 2009 at 4:31 am
Jane
Well this certainly has been in my head and I guess others are thinking it too…. I ahve been sick for 2 years with a “mystery” illness that was finally dx’d as Lyme disease even though I never had a tic bite. I got ill in my pregnancy and got WAY worse when I have birth. Long story short, bedridden since my Daughters birth (2 years ago) with over 50 symptoms… 6 months of massive abx did NOTHING for me, no longer have an LLMD… Dont know where to turn or what to do???
June 12th, 2009 at 11:50 pm
Susy
Thank you for being enlightened and able to think out of the box. We are working hard here in Florida to Educate people on the misuse of drugs in the treatment of Chronic diseases. When was the last time we cured a chronic disease with Drugs only??? I am working with strange skin diseases and and Bird mite sufferers, this is real. It is affecting many people on many levels all over this country. Doctors can’t imagine there are parasitic diseases in AMERICA. Thanks for your insight.
June 13th, 2009 at 12:47 am
Samantha
“The body can be tested by blood tests by medical professionals”
True… the problem is, they dont test because they think its in your head. When people first get sick and do go to family Dr, most come out with an antidepressant script.
July 29th, 2009 at 5:42 pm
Damn, that sound’s so easy if you think about it.
March 3rd, 2011 at 12:41 am
keep up the nice work on the blog. Do like it! :p Could maybe use some more updates more often, but i am quite sure you got some better stuff to do , hehe.