Jenna’s Lyme Video Blog
Video blog about chronic and/or neuro-Lyme
26 Responses to “Lyme Disease Destroys The Mind”
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August 17th, 2009 at 12:32 pm
Julie
Hi,
I was wondering about the test for Lyme. In 2005 I was tested for Lyme . They used the Western blot and it came back “borderline” I was just retested western blot again and again it came back borderline. I couldn’t get a straight answer (or meds) from the doctor as to what that means. I hear some labs are very bad and you should send you blood to a lab called Igenix for a more accurate reading. I also read that borderline means you have it. Anyone know anything about this? Thanks
August 20th, 2009 at 10:51 pm
Violet
You are so right. Our body follows our brian and without it, we really can’t get well. I am sorry you’re having such a tough time. I have really bad neuro myself and have so many issues with that. It gets very scary at times.
Seeing you break down in front of the camera was heartbreaking. And I agree 100% with the others who said you are amazing and brave for making this video to show people how awful this disease is.
Hang in there. You are in my thoughts and prayers.
August 21st, 2009 at 3:52 am
Clancy
i have lymes disease and im only 13 years and ive had swelling and feeling sick ive fainted a few times and ive been taking pills but im starting to have bad headaches ive had almost a year =(
August 24th, 2009 at 4:53 am
Chris
Thank you Mike for your encouragement and support. It really means a lot to me. We don’t always here from people who have gotten over it because they move on and live their life so thanks for dropping in.
August 27th, 2009 at 8:01 am
Violet
Hey Thane,
Hang in. I could have made the exact same video a few years ago. Losing yourself (depersonalization) was the worst part for me too. I’m glad to see that you are rifing. For me, that is the only thing that seemed to hit the mental stuff. You will be well. You seem to have inner strength like me (pat on back) and I got over it. I think you’ve had it for longer, but I know you can do it. You seem very similar to me.
- Mike
August 28th, 2009 at 3:14 am
Emery
This really touched me. I have been suffering since I was 5..I am 21 now. I deal with it all as well. The brain is so frustrating. You are an amazing guy. Keep pushing on…even when you feel like you can’t. This disease will tear you down. Please feel free to talk to me anytime. I have a hard time communicating at times,but I’ll get around to it.
Praying for you… Noelle
August 30th, 2009 at 4:47 pm
Janet
Thank you Keri, I’m thinking of you tons as well
BTW, yo were wondering where I am in relation to you? I am in Minnesota which is just south of Ontario. And you are in BC right? right above Washington state? I just learned all the Canadian provinces so i’m feeling pretty smart now. Good thing there are only fourteen or I would probably have given up.
September 2nd, 2009 at 6:59 am
Julie
You are amazing. You have shown so much courage creating this movie. I feel your pain. You are a hero and change is comingx
September 5th, 2009 at 2:16 pm
Susy
WOW, You pretty much said it all Thane, thanks for being you and saying it the way it is.Thinking of you tons.
September 7th, 2009 at 6:09 am
William
hello thane keep up the good work great video my name is mitch I feel your pain i t have had lyme for over 12 years here are some of my problems on death bed/blind for a few days/loss of feeling in legs in a wheel chair /grand mall siezers/depressed/pain all over/5 spots on brain/and still staying strong. we are going to win this fight I will pray for you
September 10th, 2009 at 2:43 am
Joan
Thank You Shera, I think your philosophy is great! I do try my best to stimulate my mind. I was actually thinking of doing a video about that. I just bought a globe that I have on a stand next to my chair and I quiz myself on geography every day! Also I pay close attention to current events and market news. It helps to feel a part of whats going on ‘out there’ in the world. Love your videos! I hope you keep making them.
September 12th, 2009 at 10:56 pm
Chris
Thank You Jenna
September 14th, 2009 at 10:05 pm
lewis
Thane, I too went through (and may go through it again shortly) the brain fog. I would have days I would get lost driving somewhere familiar. I had short-term memory loss and very bad brain days. Do not lose hope. Excercise your brain. I believe we can form new neural connections. Read out loud to yourself. Play games on the computer, etc. Don’t let this disease win. I’m pulling for you.
September 15th, 2009 at 9:58 pm
Susanna
Thane, I really admire your courage for sharing this video. I was crying right along with you. (((hugs))) ~Jenna
September 15th, 2009 at 10:25 pm
Vichelle
Thank you!
September 17th, 2009 at 6:31 pm
Emery
Thane, you are doing a great job. Remember when coiling/rifing you will go back through symptoms and some will get worse. I’ve really noticed an increase, not so much in ‘brain fog’, but in ‘blank brain’. Very scary. I’m not even coiling for Lyme – yet. I decided to get ride of Babesia first (and maybe a few other easy to eradicate co-infections). Also, don’t coil too often for Lyme, wait until your herx subsides. My two cents on MP – stay very far away. Please contact me off post.
September 19th, 2009 at 4:59 pm
Annemarie
Thane, Hang in there. This is a really bad mental day for you. It will pass. On some of your other videos I’ve been amazed how clear and concise you are, like explaining the Doug Coil machine. I want you to know you are in my prayers and that I’m fighting the same battle. We will win, but you are right, it’s going to take some time.
We’ll look back in a year and be amazed at our progress and we’ll have a great mission to help others struggling with this disease. Actually, you already are : )
September 20th, 2009 at 9:19 pm
Butch
Hi Thane,
I’ve watched many of your videos, and I thank you! I too have had Lyme, got sick when I was 17, now I am 30. I can really relate to your video. I completely agree with the mental stuff being so much worse. I recently started getting myoclonus from Lyme and although it was a symptom people could ‘see’, I would much rather have that than the brain fog and terrible constant anxiety. You are an inspiration, and please keep making videos! You are such a sweetie!
September 21st, 2009 at 1:55 am
Franny
I’m glad my video from last fall helped you to share this brave, courageous, and helpful, hopeful video to share with others. You are an inspiration to many even when you feel like crap & that you have lost your mind. We help each other through this illness and best of all, we give this disease a voice. Amen! Thanks for the energy my friend, giving you some healing energy as well! Hang in there!
September 23rd, 2009 at 3:05 pm
lewis
I’m totally fucked in the head, my best friends dad commited suicide from the lyme. Eh, I wont succumb to that.
September 26th, 2009 at 9:56 pm
Sandra
hey bro..i know that wasn’t easy. im pulling for you..as long as you find a way to stay positive and you clealry have that going then you are holding on the part of the brain that matters. The part where we excercise free will. One day at a time…. keep fighting and helping people.
you never know when there will be that sudden improvement…such an F’d up disease.
i’m sure this video helped many people understand.
September 29th, 2009 at 11:00 am
Tim
You said it… You don’t have your mind, but you do have HOPE.
October 1st, 2009 at 2:32 am
Marilynne
Thank you, thank you, thank you!
I’ve been going through this exact same thing and have not been able to express to my family members who are at a great distance what i am going through and feeling. You said it all and the “brain fog” an emotional pain is evident as you speak.
Your optimism in spite of it all is something I also have but never could express as you have. I am sending your video to family and friends.
Thank you,
Jeani
October 2nd, 2009 at 2:38 am
Daniel
Thank you Heather. I wasn’t sure how this video would be received but i’m happy now that I posted it. I’ve been frustrated for so long at the lack of understanding we experience and am happy that i’ve been able to somewhat articulate what so many of us experience. Much love to you too!
October 3rd, 2009 at 2:16 pm
Joan
Thank you for your encouragement. I remember a video of yours from last winter when you were having a particularly hard time and wernt sure you could go on. It is videos like that that really show the horrors of lyme disease. Your video also helped me dare to show my true feelings on youtube. We will get through this I know. Thanks again. I’m blasting you with some warm and healing energy too!
October 5th, 2009 at 9:48 pm
never ever give up! we have *HOPE* love you