I relate to all you say, and it drives me crazy. My own mother does not get it. She does not even try to learn about
it. I’m sure my husband and two daughters are infected.
If we had cancer you wonder if they would be there. It is easier to just be alone.

Hi HalseyKay,

I am so sorry your mom doesn’t understand. Collectively, as a society, we are ignorant and unless you have “visible” signs of illness, people often aren’t sympathetic. It sounds as if it would be better to find a few friends in the lyme community who would be more supportive. I wish you and your family well in your healing.

THANK YOU for this.. I am sending this to all my freinds and family who just think I need to get out of bed and do yoga or stop being lazy and just be the “shandy” you used to be…. People can be very ignorant.. even family…

You are welcome!! I do hope it helps to open their eyes. It is so hard when family and friends don’t understand…believe me, I know!
Blessings and best wishes for your healing, Shandy.

I can relate to what you are saying. I have suffered from lyme for 8 years. This is the first summer that I am able to be more like myself. I’m glad you have addressed this area that is so often overlooked as part of the disease. Every relationship I had fell apart. It took and is taking time to rebuild all of them. I was fortunate that my parents were able to care for me during this struggle. Too continued good and improving health for all lyme sufferers!

You really hit the nail on the head about what people think a sick person “looks like”. You just can’t “see” Lyme. I have had lyme for over 7 years now. I had to quit my job as an electronics technician and stay at home. I applied for disability and was denied, but will be having a hearing in 9 months. I some times get the feeling that some people think I’m faking my symptoms.
I do have a supportive family and church family. Prayer and Bible reading are very helpful.
Josh in VT

my daughter has had lyme for about 5 years now.She also had to quit her job and applied for disability and lost.She fineally hired a attorney and won So dont give up.

Yes, don’t give up, Josh! I was denied for SSDI the first time around, by the second time, I won. Persist and believe in Him, and He will provide all things that you need! Blessings, Connie

Thank you for making this video. I found out about it from someone on an ME/CFS site and you’re right, this situation is the same for many of us with different invisible illnesses. I agree with you about forgiving others in your heart, I’ve been working on that since New Year’s Day. You did a perfect job expaining everything. 5 Stars!!

Thanks for the compliment, foggygyrl! I am glad that you enjoyed the video. Best wishes for your healing,

Connie