Elaine, any success in NY? My Mom is being brushed off, as all tests have come back negative. The medical community here in NB seem averted to accept that Lyme is even possible in our province. They say it’s in her head. She has maybe 2 good hours a day out of bed; weakness; dizzyness; slurred speech; joint and muscle pain; hypersensitivity to light and sound.CT; MRI and Lyme testing all “negative”. Saw that you were from NB as well, and wondered how your quest was going?
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar’s Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of “Raw-Garlic a day.Only thing that helped Texas Dar !
Thank you for sharing your story. The doctors thought it was “all in my head”, too. Then my test results came back positive and my MRI showed the damage. Now, I have great doctors who did the necessary tests and treated me instead of blaming me for what they didn’t know. I’m suing the doctors who misdiagnosed me so this doesn’t happen to others.
September 9th, 2009 at 7:34 pm
Emery
if i could contact her i would… wow… i agree totally i have lyme disease too and went through all of it
September 10th, 2009 at 1:13 am
Anne
Elaine, any success in NY? My Mom is being brushed off, as all tests have come back negative. The medical community here in NB seem averted to accept that Lyme is even possible in our province. They say it’s in her head. She has maybe 2 good hours a day out of bed; weakness; dizzyness; slurred speech; joint and muscle pain; hypersensitivity to light and sound.CT; MRI and Lyme testing all “negative”. Saw that you were from NB as well, and wondered how your quest was going?
Lori NB Canada
September 12th, 2009 at 2:42 am
Jane
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
September 13th, 2009 at 1:01 pm
Joanne
Great video…I live in Canada and I am going to NY to get help….I understand your pain.
Elaine
NB Canada
September 15th, 2009 at 9:57 am
Louise
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar’s Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of “Raw-Garlic a day.Only thing that helped Texas Dar !
September 18th, 2009 at 9:56 pm
Patti
Hi there,
I wrote a Lyme brochure with the help of 2 Lyme specialists. Will email anyone a copy.
Elaine in Virgina.
September 21st, 2009 at 10:23 am
Daniel
Thank you for sharing your story. The doctors thought it was “all in my head”, too. Then my test results came back positive and my MRI showed the damage. Now, I have great doctors who did the necessary tests and treated me instead of blaming me for what they didn’t know. I’m suing the doctors who misdiagnosed me so this doesn’t happen to others.
September 23rd, 2009 at 10:58 pm
William
Any tick attachment is dangerous, any penetration of the skin by tick mouth parts can transmit infection