Jamie Talks about struggling with lyme disease.
MyLymesStruggle asked:
Please see www.youtube.com for my new vision. It is hard day-to-day, and especially in this last year.
Joanne
July 28th, 2009 at 10:14 pm
Joanne
Hi,
Im so sorry for your loss of your mother.
I have been researching Lymes and belive I have it too.
My Dr dosnt want to test me so Im looking into finding someone who will.
I have a lot of other health problems too and I think Lymes is going to be up in the top 3 ,I feel horrible,the brain fog/headache and heart beating out of my chest along with the joint pain is driving me crazy :0(
I will sub and keep up with your progress!
Blessings,
Russ
July 30th, 2009 at 6:47 am
Mary
You are in my thoughts, how are you doing now?
July 30th, 2009 at 1:08 pm
Bob
i just got diagnoised with lymn , i am really scaried
August 1st, 2009 at 1:45 pm
Sandy
ummm i hope i dont offend anyone and i dont mean to sound like a noob but whats lyme disease?
August 2nd, 2009 at 6:16 am
Louise
I was very close to my Mom as well. Lost her in 2000 due to Agressive Metastic Breast Cancer. She died at only 50. Watching this video made me feel like crying as well. Ever since I lost my Mom I still have a huge void in my life, always will. The best of luck to you in your fight. You have the support of me and everyone else here on Youtube, so dont give up.
August 4th, 2009 at 12:58 pm
Tiffany
Lyme disease destroys your nervous system. If you took a pill in the beginning of your symptoms, the progress of the disease would halt or slow down. Few take it so early, and Lyme disease does not have a cure. It also may regress on its own, as any dormant virus does, meaning you need to take life and your disease more seriously.
August 4th, 2009 at 8:23 pm
Sandy
omgosh, i was nearly crying when you talked about your mum ):
this is so sad.
i probably sound really stupid now but what actually does lyme disease do to you?
much love oxox.
August 6th, 2009 at 1:11 pm
Scott
You’re very fortunate then. But do not disregard how how sick others are. You can get VERY sick with Lyme disease and you do feel like you want to die. Just consider yourself very, very lucky.
August 7th, 2009 at 8:22 pm
Cameron
Try rife machine has lime setting Start out slow work you way up! try holistic healing has help me! Rife machine can cure lime, cancer,and many more!! biosulotions plus rife machine!!!! Sometimes I even have a normal day! please take htp 5 helps with depression naturally take 35m helps sleep too!! rife machine is amazing please try this ! antibotics can cause yeast that has the same symtoms as lime ! With the rife I do not have to take anti biotic please take probotics thilkthistle,antifungals
August 9th, 2009 at 3:37 pm
Julie
I’ve been taking 1 pill a day for the past month i feel back to normal, i have 1 week left of taking the pills, lyme disease is not that serious….. wow
Over 20,000 people get lyme a year..
August 12th, 2009 at 2:36 pm
Dan
Why do people talk like your going to die with Lyme disease? wow i take one fucking pill a day thats it.
August 12th, 2009 at 6:39 pm
Janet
sorry to write two comments but ran out of room. as I was saying, I lost my Mother, my rock, my comforter. Jan 19th, 2009, I totally feel your pain on this loss. I am lost without her, but am glad her battle with skin cancer and 9 years of pain is over. I am so sorry your husband is not supportive, I can’t relate to that, my hubby is now my rock now that my mom is gone. I have faced a lot in my life and I started documenting the big part on my channel, and once I get a good cam I will do more.
August 14th, 2009 at 5:27 pm
Annemarie
my husband seen a video about the famous 10 year battle with Lyme disease. He wanted me to look it up to see if its something that fits what I have been going through for over a year now. So far I am not sure, but I am sure your videos will help me to figure it out. So I subscribed and I am going to go through your videos to see if I can compare what I have been going through, with you. Thank you for documenting your struggle so people can know what its like. You WILL get through it, I just lost
August 16th, 2009 at 9:16 pm
Daniel
Hi Jamie, I found your video today. I read the comments and it makes me even MORE of a warrior for Lyme patients and finding better treatment and prevention. I have Lyme… got it in 1994… so lots of years. I am so sorry you lost your Mom. Please know that she is there with you and your son. KNOW that things are getting better on the Lyme front. I have seen so much change in the years since I got sick. So in the next couple of years… THERE WILL BE GREAT CHANGE. FAITH and PATIENCE
August 20th, 2009 at 2:41 am
Bob
Jamie, i was diagnosed in 2005 too and i know the uphill battle just like lots of other people out here. thanks for sharing your story. it helps to see your story and read peoples comments and know that we are not alone in this. good luck.
August 20th, 2009 at 4:46 am
Michelle
Jamie,My heart brakes for you. I hope you get better real soon. I pray for you.
Kaden knows how much you love him. Your a good mom and your going to get better and be back at home with your baby. Hang in there. Lyme is a horrible disease I know I have it. But you will get better. Stay Strong. We are all pulling for you. Please let us know how you are?
Maria
August 23rd, 2009 at 1:56 pm
Cameron
Lyme is an organic brain infection. That means that it does cause all kinds of mental problems but with treatment these slowly disappear. And I also do have thyroid problems and yes my doctor is very knowledgeable. He has me on all the right meds. Thankyou for your comment.
August 24th, 2009 at 6:07 am
Samantha
sounds like lymes IS alot like bi-polar… Cause that Is what you just acted like. Weird… Also she knew she keeps saying um? So thyroid and now Lymes can both be linked to a mental condition. I hope you get better and I also hope our doctors know what the hell they are doing.
August 25th, 2009 at 8:27 am
Joanne
well i’m glad i found this. i have been gettin my but kicked by lyme for nearly 8 yrs now. did the pic line with i.v. rocephan for 2 months. seemed to help but if i dont take oral antibiotics frequently i cant seem to get up and do anything. this thing called lyme really sucks. wish they could come p with something to either irraticate it or manage it better without having to keep going on antibx to feel somewhat o.k. because even then i dont feel great..
August 27th, 2009 at 3:14 pm
Chris
I am convinvced that this is what I have (LD) ! After viewing Jaimiei’s series of video’s I “know” I have it now. Unfortunately my doctors scoff at this notion; Down here in Georgia they are under the impression that Lyme Disease does not exist. In the meantime Tramadol is the only thing I’ve found that is effective for the intense body pain. The attack I had last year almost left me incapacitated and unable to work and seriously considered ending it all….
August 29th, 2009 at 7:53 am
Louise
Ive had Lyme for almost 3 years. The doctors are somewhat stupid when it comes to Lyme disease. I was taken back when the first doctor told me that chronic lyme doesnt exist. I was floored and thought that this is the dumbest PERSON I ever met, let alone a “Dr”. I got used to hearing it for the next 2.5 years by others doctors. I finally found a doctor that says “of course chronic Lyme exists, those doctors are crazy!” NOT ME!!!
August 30th, 2009 at 1:56 am
Violette
Hey. I’m 17 and I’ve been I’ve had Lyme for almost four years. I was in a wheelchair for three and a half of those years. I have just recently been able to walk and start to get my life back. I made a video of my experience if you want to see it. It’s on my site. Good luck!
September 2nd, 2009 at 1:46 pm
William
I’m Dealing With Lyme, I have it but traditional testing says I don’t, so trying to get Dr. to even give me antibiotics is a problem. I live in NH. I Figured out that I’ve been sick over a year now and just figured it out. I’m a pharmacist and was wondering has your Dr. tried IV antibiotics or just oral? Because IV’s get past the “Blood Brain Barrier” and can then treat in your CNS (“central Nervous system”)let me know thank
Stuart P.S you have a accent are you from Utah?
September 5th, 2009 at 2:59 am
Joan
Thanks so much. I miss her like crazy. I am so happy that your boyfriend is better. Thanks for watching my video.
September 8th, 2009 at 1:51 am
Marilynne
I am so sorry that you are feeling this way because I know so well the feelings you are explaining. The heart and the not sleeping are the worst. You have to make sure you are treating it the right way and don’t stop treating until you feel better. God has done amazing things for me since I became ill.