Category Archives: Personal stories

personal stories of struggles with Lyme disease

Avril Lavigne Opens Up About Her Struggle With Lyme

Published on Jun 29, 2015

Singer Avril Lavigne said she’s seeing progress in her treatment for Lyme disease, which struck her last year while she was on tour. The Canadian singer, known for multiple hits in the early 2000s, said trying to get a diagnosis was the worst time of her life.

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Be Careful on the Appalachian Trail

Local station picked up this story filmed near Daleville, VA in early November 2013  by Logan McCulloch as he was passing through on his southbound Appalachian Trail hike to raise awareness for Lyme disease. Thanks to his friend John Burrows for arranging this segment and to he and his wife Susan for hosting him in their home.

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Erica Volker Fights Chronic Lyme Disease

By Paul Volker

This is the story Erica Valker’s story battle with Chronic Lyme Disease. Three years ago she was happy, active and seemingly healthy. Erica has now been debilitated by Lyme disease and multiple co-infections that have her fighting for her life.

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Amy Tan and Dr. Stricker Interview

Sunday, August 03, 2014
BEYOND THE HEADLINES
August 3, 2014
Lyme Disease
Hosted by ABC7’s Cheryl Jennings

Each Beyond the Headlines show focuses on a different topic affecting the people who make up the fabric of the Bay Area. What do you know about the disease that you could get from a tick bite? It’s called Lyme Disease.

At first, the U.S. Centers for Disease Control only reported about 30,000 cases a year. But, new studies reveal the numbers could be far higher… as many as 300,000 a year. Now, the CDC estimates that number could be as high as a million cases a year!

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Heather Needs Our Help – Now It’s Too Late

Updated August 1, 2014 with sorrow Soon after I published this, Heather Askeland took her own life due to her desperate physical and financial situation. Instead of removing the video, I felt that Heather’s death could potentially help someone suffering with these issues. Suicide is not the answer. However for some, it appears to be the only path out of misery and pain…these poor souls deserve our compassion. Shame on the medical community and insurance companies that put so many people in this horrible situation. Published on Apr 10, 2014 by Heather Askeland “I am desperately ill with Lyme disease, am homeless and have no family willing to help. This is, unfortunately, a life or death situation. I need an angel to come forward and help me save my life. PLEASE FORWARD WIDELY. please.” For more info about who I am, google “Heather Askeland poetry.” My previous youtube channel is “heiwalove,” which has my Lyme story on it (recorded when I was doing much better). Heather was asking for an angel…she is with the angels now.

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Yolanda Foster Shares About Her Chronic Neuro-Borreliosis

Listen to Yolanda Foster from “Beverly Hills Housewives” share her story of being diagnosed and finding a treatment for chronic Lyme disease:

 Yolanda Foster talks about Lyme Disease and her Lyme Disease Treatment over the past few months. The LRA or Lyme Research Alliance held a GALA event in Connecticut on April 6th to announce an award to Yolanda. She experienced joint pain, insomnia, and other lyme symptoms and even said it felt like an infection in her brain. Yolanda was treated at Sponaugle Wellness Institute in Palm Harbor, Fl as a referral from Suzanne Somers. |http://http://sponauglewellness.com/w… | Natural Lyme Treatment | Sponaugle Wellness Institute, 32815 US Highway 19 North, Palm Harbor, FL 34684 | 888-775-2770

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Chronic Lyme Disease – Conversation Live! Part Two

Part Two is far better than Part One – you can see that the director of the show put more effort into getting better facts.

Each year an estimated three hundred thousand Americans are diagnosed with Lyme disease. If the diagnosis is confirmed early enough, the disease can be treated with short-term antibiotics. But if Lyme goes untreated, symptoms can progress. On Conversations LIVE our panel of experts continued our discussion on Lyme disease with a focus on symptoms, diagnosis and treatment in humans.

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Dr Rick Sponaugle Interviews Recovered Client

Dr. Rick Sponaugle, Medical Director of Sponaugle Wellness Institute, explains the brain science of Lyme disease to Jennifer, a Lyme patient from Virginia. Jennifer states that her depression, brain fog, chronic fatigue and fibromyalgia are gone after 7 weeks of Lyme treatment at Sponaugle Wellness.

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Never Give Up

Neuro-Lyme can cause obesity due to lack of motor skills and neurological pain in all joints leaving many of us bedridden and acutely depressed – so much so that suicide is the number one cause of death (that we know of currently) in Lyme disease.

What can we do?

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Hantavirus: A Viral Co-infection That Kills Is Spreading From Yosemite National Park

BEWARE: Take the time to listen to this entire program. Mice are contaminants of many tick-born diseases including Lyme and Hantavirus.  Wear a mask if you are cleaning a camp in spring or sweeping/cleaning mouse dropping at any time.

Dr. Gary Ridenour talked about various disease outbreaks such as Hantavirus, as well as West Nile, and Lyme disease. Interestingly, historians believe that Alexander the Great died from exposure to Hantavirus in 323 BC, and soldiers were also struck by it during the Korean War. The rare disease is spread by the deer mouse, and there’s been a recent outbreak at Yosemite National Park from people who stayed in the “signature tent cabins,” he reported. The incubation time is 2-4 weeks, and people who contract the virus (which is not passed between humans) may experience flu-like symptoms, and fever. About a third of the cases are fatal, with lungs filling with fluid, leading to respiratory failure. In the 1950s, it was considered for use as a biological weapon, Ridenour noted. For further info about Hantavirus, view this report (PDF file) prepared by Michael Bradshaw.

West Nile virus was first identified in the 1930s, but until the 1990s its appearance was very sporadic. Birds are the most common carrier of the disease, which is spread to humans via mosquito bites. The Dallas, Texas area currently has an outbreak, where there are a lot of robins and crows, Ridenour detailed. While 80% of the cases are sub-clinical, others get flu-like symptoms, nausea, and diarrhea, and a small number of people die. “A lot of health agencies have said that (insecticide) spraying is too expensive for the number of people affected,” he said. Regarding Lyme disease, which is caused by certain tick bites, some victims experience long term auto immune problems like chronic arthritis.

Read One Woman’s Horror Story:

Cathy Carrillo, who contracted hantavirus at Yosemite National Park, sues park resort manager for millions

Carrillo was in critical care for three weeks and in rehab for 10 days following outbreak of the deadly virus that killed three people. The virus was transmitted by mice droppings, urine or saliva.

Read more: http://www.nydailynews.com/life-style/health/woman-contracted-deadly-virus-yosemite-sues-article-1.1337734#ixzz2VkgtUVBo

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Something Easy to Help Recover From Chronic Neuro Lyme Disease

Watch this with an open mind.  I realize that we are all at different levels of disability, however, these little ideas can have a big change. But honestly, isn’t even a small change towards better health worth more than money can buy?

Amy Cuddy shows how “power posing” — standing in a posture of confidence, even when we don’t feel confident — can affect testosterone and cortisol levels in the brain, and might even have an impact on our chances for success.

Online, distance, management and leadership courses provided by Eliesha Training: http://distancelearning.eliesha.com/
Twitter: https://twitter.com/ElieshaTraining
Facebook: http://www.facebook.com/ElieshaDistan…

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Having Chronic Lyme Disease

My life with chronic lyme disease and co infections. This is a GREAT day for me,very few and far between. Apparently it also makes me itch worse than I thought. Most people w/ Lyme don’t remember getting bit, so get in to an LLMD if you think you have it. Please take 2 minutes and sign this petition for Lyme Disease Health Care Reform

http://www.lymedisease.org/petitionscript/index.php

https://www.change.org/petitions/the-u-s-senate-the-right-to-be-diagnosed-and…

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Dr. Phil Discusses Chronic Lyme Disease

The  much-awaited Dr. Phil program, called “Deadly Consequences,” included a segment about Lyme disease. As I write this blog, it hasn’t aired on the west coast yet, so I haven’t seen it. But I’m getting ready to.

Guests include former model Stephanie Vostry, who is fighting to survive chronic Lyme, TV weathercaster/Lyme advocate Brooke Landau, Dr. Phil’s senior producer Kathy Giaconia, who has Lyme disease, Lyme-literate physician Dr. Chitra Bhakta, and the IDSA’s Dr. Paul Auwaerter.

This video is presented on You Tube courtesy of Lymepedia.org

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Euthanize Your Child Suffering With Severe and Painful Lyme Disease?

Annette says she wants the right to euthanize her severely-disabled children, who are being kept alive only by feeding tubes. What would you do? Then, former model, Stephanie Vostry, says she’s fighting to survive chronic Lyme disease, an illness some believe she may be faking. Plus, chronic Lyme disease hits close to home for a “Dr. Phil” staff member.

For more visit http://drphil.com.

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Hope for Chronic Lyme from 2011 Gala Event

The following video was presented at The Time For Lyme 2011 fundraising gala, and tells the stories of
former IBM executive Richard (Dick) Gerstner and fashion designer Ally Hilfigers battle with Lyme
disease.

The section about the new and exciting research being conducted by Karen Newell, acclaimed scientist at
Texas A& M, is the researcher working with Viral Genetics on the drug listed in the post above, and whose
painstaking and cutting edge work may hold the promise to unlocking the secrets of Chronic Lyme
disease.

Warning, this is a fundraising video so the last part is an appeal for money – a worthy cause for any who can afford
charities.

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I Will Knit Your Life – Lyme Disease Story from Russia

 Inna is 26 years old, she graduated from the university in Kaliningrad in Russia, got married and gave birth to a son, Eric (6 years old now), whom she is bringing up alone. Inna is weakening on a daily basis despite all the efforts of Kaliningrad infectious disease specialists, neurosurgeons, rheumatologists. After more than a year of complicated medical tests, doctors have finally put a difficult diagnosis: Lyme disease, or Lyme borreliosis. In Russia almost nobody deals with this disease research and treatment.

You can contribute to stop her disease, but it requires expensive tests, examinations and treatment. On September 8-th 2009 Inna was diagnosed with a tick-borne Lyme borreliosis, joint option, herpes infection (approximately after one year since her first appointment at the local medical clinic in Kaliningrad), later neuro-borreliosis, stage 3, in the form of Encephalo-Radiculo-Neuritis, secondary immunosuppression of mixed origin, polylymphadenitis of unknown genesis, myofascial syndrome, polyneuropathy, poliarthralgia, polymyalgia. Inna got a treatment with antibiotics, but with no improvement. Her whole body continues to twist and ache, she has a sore throat, pain in the ears, backache, swollen and aching feet, palms and face, her vision deteriorates, her body temperature constantly keeps at 37.6 C with ache in the muscles and joints (with cramps), strong headache in the neck, fester and itchy eyes and skin and  heart.

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Near Death by Vlog

I live with horrible pain, flu-like symptoms and cognitive disorders 24×7, due to Multiple Sclerosis and Lyme Disease.

People may see me on a video and think, “Wow! She doesn’t LOOK sick!” But they have no idea how trying to think, talk and articulate for just a few minutes sends me into unfathomable agony!

It just makes me so angry that I can’t do the littlest things without feeling like I am being beat by baseball bats and dragged by a truck!   Not fair!

Posted in Chronic Lyme Disease, lyme_stories, lyme-videos, Personal stories | Tagged , , , , | 2 Comments