Category Archives: Lyme in the News

chronic Lyme disease in the news

Rock Stars Suffer With Lyme Too – Avril Lavigne

Never feel alone in your struggle – Avril is hardly a hypochondriac and yet she was treated the same way many of us were by the very doctors we counted on to help us. Watch:

World News Videos | US News Videos

Whole story: http://abcnews.go.com/Health/avril-lavigne-lyme-disease-questions-answered/story?id=30046495

Things on video that are incorrect:

  • You can contract Lyme from a tick in less than 36 hours.
  • Lyme is in all 50 states and in every country on the planet.
  • You don’t always get a bulls eye rash.
  • Early antibiotic treatments may not cure if you aren’t given enough for the correct length of time which may be longer than many doctors prescribe.

Test yourself on Lyme facts at:

http://lymediseaseresource.com/wordpress/can-you-find-true-or-false-in-this-post-on-chronic-lyme-msids/

 

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Be Careful on the Appalachian Trail

Local station picked up this story filmed near Daleville, VA in early November 2013  by Logan McCulloch as he was passing through on his southbound Appalachian Trail hike to raise awareness for Lyme disease. Thanks to his friend John Burrows for arranging this segment and to he and his wife Susan for hosting him in their home.

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NBC and SELF magazine reported on chronic Lyme disease

This story was published 2 years ago with a few important points that continue to fuel the medical debate.  Media and researchers confirm that Lyme has been reported in all 50 states but medical doctors refuse to admit people are being infected in all 50 states. Also, the first tier to diagnose Lyme disease is with the ELISA antibody test, some sources report up to 50 and even as high as 75% false negatives (depending on the time of year) and as low as 20 – 30% as presented here (the truth is anyone’s guess as there is no 100% reliable test available as of now, August 2014.)

Visit NBCNews.com for breaking news, world news, and news about the economy

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Dr. Sapi Interviewed on WTIC Fox 61 About Biofilms

WTIC Fox 61, Dec.11, 2013: Dr. Eva Sapi, member of UNH’s biology and environmental science department talks about the biofilm produced by Borrelia bergdorferi, the bacteria that causes Lyme disease. Footage courtesy of WTIC Fox 61. For more information about the University of New Haven, visit http://www.newhaven.edu. Also interviewed is Phylis Mervine, the founder of LymeDisease.org.

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Lyme Disease Continues to Grow in Canada.

Jim Wilson President of the Canadian Lyme Disease Foundation speaks about Lyme disease.
Lyme disease is the fastest growing infectious disease in North America.

Disease carrying ticks are becoming more and more prevalent in Canada and are on the move. These ticks are transported randomly throughout Canada by our friendly migratory birds that can also harbor Lyme disease and other diseases in their blood.

Lyme disease can cause long‐term health issues if not identified and treated early. It can affect the brain, eyesight, hearing, heart, nervous system, muscles, joints, digestive tract, and lymph nodes.

Lyme disease has been misdiagnosed as multiple sclerosis, Parkinson’s disease, ALS (Lou Gehrig’s disease), several forms of arthritis, chronic fatigue syndrome, fibromyalgia, bowel disorders, and many other diagnoses.

Ticks can be found in your lawn, in tall grass or brush, on logs or woodpiles. Pets can carry ticks into your home.

The British Columbia Centre for Disease Control has found ticks carrying Lyme disease throughout the southern portion of the province including the Vancouver area, Victoria, the Okanagan, and the Kootenays.

For more information visit the website canlyme.com

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PBS Publishes Dramatically Revised CDC Report on Lyme Disease Statistics

PBS Aired on Aug 20, 2013
A new report from the Centers for Disease Control says 300,000 Americans contract Lyme disease each year, 10 times the amount previously believed by health officials. To examine the significance of this finding Jeffrey Brown speaks with Beth Daley, who has been investigating the disease and its impact for the Boston Globe. See full story at http://www.pbs.org/newshour/bb/health/july-dec13/lyme_08-20.html

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Hantavirus: A Viral Co-infection That Kills Is Spreading From Yosemite National Park

BEWARE: Take the time to listen to this entire program. Mice are contaminants of many tick-born diseases including Lyme and Hantavirus.  Wear a mask if you are cleaning a camp in spring or sweeping/cleaning mouse dropping at any time.

Dr. Gary Ridenour talked about various disease outbreaks such as Hantavirus, as well as West Nile, and Lyme disease. Interestingly, historians believe that Alexander the Great died from exposure to Hantavirus in 323 BC, and soldiers were also struck by it during the Korean War. The rare disease is spread by the deer mouse, and there’s been a recent outbreak at Yosemite National Park from people who stayed in the “signature tent cabins,” he reported. The incubation time is 2-4 weeks, and people who contract the virus (which is not passed between humans) may experience flu-like symptoms, and fever. About a third of the cases are fatal, with lungs filling with fluid, leading to respiratory failure. In the 1950s, it was considered for use as a biological weapon, Ridenour noted. For further info about Hantavirus, view this report (PDF file) prepared by Michael Bradshaw.

West Nile virus was first identified in the 1930s, but until the 1990s its appearance was very sporadic. Birds are the most common carrier of the disease, which is spread to humans via mosquito bites. The Dallas, Texas area currently has an outbreak, where there are a lot of robins and crows, Ridenour detailed. While 80% of the cases are sub-clinical, others get flu-like symptoms, nausea, and diarrhea, and a small number of people die. “A lot of health agencies have said that (insecticide) spraying is too expensive for the number of people affected,” he said. Regarding Lyme disease, which is caused by certain tick bites, some victims experience long term auto immune problems like chronic arthritis.

Read One Woman’s Horror Story:

Cathy Carrillo, who contracted hantavirus at Yosemite National Park, sues park resort manager for millions

Carrillo was in critical care for three weeks and in rehab for 10 days following outbreak of the deadly virus that killed three people. The virus was transmitted by mice droppings, urine or saliva.

Read more: http://www.nydailynews.com/life-style/health/woman-contracted-deadly-virus-yosemite-sues-article-1.1337734#ixzz2VkgtUVBo

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Death From Lyme in Australia Where it Officially Doesn’t Exist

Thousands of people are suffering from chronic Lyme disease in Australia, a number that is certainly skyrocketing as officials deny that Australian ticks carry Borrelia burgdorferi or any other spirochetes that cause disease. This position is becoming harder and harder to defend as people are getting sick with Lyme disease who have never left the continent.

Published on Mar 19, 2012

In a major Lyme disease development, a man has died from a disease he caught from a tick, and the victim’s doctor is urging authorities to act.

There are a growing number of organizations, blogs and websites in Australia designed to help those who are suffering or who think they may have Lyme disease.  Search internet or try Lyme Disease Association of Australia: http://www.lymedisease.org.au/.

Published on May 18, 2013

They’re the Perth Mums and Dads, adults and children in the fight of their lives. Sick of being sick and of being given the run-around by a government with its head in the sand, they’re taking desperate measures, demanding 1) doctors consider Lyme Disease as a part of their differential diagnosis, 2) calling for laboratory testing facilities to be accessible in Australia, 3) demanding the government acknowledge the illness and facilitate good medical practice and MediCare support, and 4) advocating the routine use of antibiotics following a tick bite to cheaply and efficiently prevent a chronic illness from developing in the first place.
Reporter: Mark Gibson
Story link: http://www.7perth.com.au/view/today-t…
For more information on Lyme Disease in Australia:
www.karlmcmanusfoundation.org.au
www.lymedisease.org.au

Posted in Babesia A Lyme Coinfection, Chronic Lyme Disease, Diagnosis of Lyme disease, Lyme in the News, Medical Debate, Politics | Tagged , , , | Leave a comment

1 Million New Lyme Cases in Germany in 2012

Published on Nov 28, 2012

Much recently reported at a 2012 ILADS conference, Dr. Alan MacDonald the discoverer of biofilms with Lyme disease, announced that there had been 1 million new cases of Lyme disease in Germany for 2012. Now let’s sit back and just digest that for a moment.

1 million new cases, just for the year of 2012!!! Why isn’t this being talked about in the news, instead of just being talked about on blogs and forums. The media is so willing to report about West Nile Virus, but yet when it comes to Lyme disease I never see anything about it on CNN or MSNBC, and any of the other news stations.

And I love when doctors and people suggest that it’s not that big of a deal due to a low death rate. If the suicides due to the disease along with organ failures were recorded, I guarantee the death rate would be a lot more than West Nile virus. Not to mention the financial strain it’s putting on families, this disease will drain your bank account!

The IDSA reports that 30,000 to 40,000 new cases appear in the US each year. They have admitted that due to inaccurate collection of statistics, that the cases are 10 to 12 times that. The doctors that work for the IDSA are educated people, well since they are educated why don’t they change the way they collect statistics. I just recently read how my own state Michigan collect statistics, all the loops you have to jump through to get recorded is ridiculous.
http://s10.postimage.org/k80tl4vah/hg…

None of the people in my region of the state are even getting recorded, just this past year in 2011, not one case was recorded in southeastern Michigan.
http://s12.postimage.org/sitdx6h8d/jj…
http://s12.postimage.org/vhmif2mkd/gg…

Yet when I talk to friends and family, I know almost a dozen of people that have had it or are still dealing with it right now. One friend actually got bit on Harsens Island and went blind for a period of time, but eventually he got better and regained his eyesight. Not everyone is so lucky, especially when you can’t even find the right treatment you need for the disease. There are only 4-5 Lyme literate doctors in the state of Michigan, so when you get bit you can bet that you’re gonna be on a waiting list for a while.

And not only are the collection of statistics screwed up, but the official Lyme disease test doctors use only looks for one strain of Borrelia bacteria, which doesn’t account for the other strains, which some say there are up to 100 different Borrelia strains out there. It’s obvious we have a big problem on our hands, along with the other bacteria that is becoming resistant to antibiotics.

What we need is a more accurate test and educate doctors about the disease. In my region estate I went to 10 different doctors and emergency rooms, not one of them suggested testing for Lyme disease. All the doctors suggested that they tested me for everything, when that statement was totally untrue. It’s obvious the healthcare system is failing and change needs to happen!

I just can’t imagine how many people are walking around with the disease and they don’t even know it. Anyways I hope this video has helped educate you a little about Lyme disease and stay tune for more unregulated information from the Covert Chronicle.

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Insights From Dr. Klinghardt on Complications That Extend Chronic Lyme Disease

Dr. Dietrich Klinghardt is a physician specializing in neurological diseases such as autism and lyme, practicing out of Kirkland, Washington. Over the years, he has found that the lyme and autism patients who did not progress in their recovery many times had an underlying condition known as hemopyrrollactamuria (HPU), also known as kyptopyrroluria (KPU). HPU is a severe but reversible deficiency of zinc, biotin, manganese, vitamin B6 (or P5P), and arachidonic acid. When treated for this condition, his patients were then able to move forward in their treatment with success.

Dr. Klinghardt has found that HPU occurs in Lyme disease around 80% of the time (or more), and it occurs in over 75% of patients with heavy metal poisoning. The incidence of HPU in children with autism is over 80%.

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Saratoga Lyme Forum in May 2012

Here are the links to the Skidmore videos from a presentation on Lyme disease and co-infections, including time index for location of each speaker (use your mouse to slide the timer to the indicated time):

VIDEO 1
@ 25:00 Rep. Chris Gibson, US Congress 27th District, NY
@ 31:00 Pamela Weintraub, Author of “Cure Unknown”
@ 1:11:39 Holly Ahern, Microbiologist, Lyme Mother, “A Tale of Two Lymes”
@ 1:43 Lorraine Johnson, Esq., CEO Lymedisease.org, Board Member ILADS, “The Cost of Chronic Lyme”

VIDEO 2
@ 20:28 “Leah” Lyme and Babesia patient of Dr. Richard Horowitz (Friends and Family should watch!)
@ 23:50 Dr. Richard Horowitz “Multi-Systemetic Infectious Disease Syndrome” (A MUST SEE!)

VIDEO 3
@10:45 Dr. Daniel Cameron, MD, MPH Former President of ILADS, Beth Israel Medical Center, Mt. Sinai Hospital. ”Obstacles and Solutions for Tick-borne Diseases”
@ 45:24 Dr. David Lieby, MS, PhD ”Challenges of Tick-borne Illness Detection” (Very informative if you are interested in learning more about current and future tests for LD)
@1:46:45 Dr. Kenneth Liegner “A Leading Warrior in Lyme” (VERY GOOD and a MUST SEE for EVERYONE)

VIDEO 4
Conclusion by Rep. Chris Gibson

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Is All Chronic Illness Lyme Disease?

Published on Sep 13, 2012 by 

Lyme disease is the only known Pathogen to man that can actually be tested for Seriologically in Chronic Neurological / Psychologicial Illness.

Every other chronic illness listed below can NOT be tested for, yet is Given a Medical Name.

Check out the List Below. See what you or a Loved one have, then Get yourself Checked for Lyme disease.

ALS (Lou Gehrig’s Disease) Addison’s disease Allergies and sensitivities Alzheimer’s disease and dementia Anemia Ankylosing spondylitis Anorexia and bulimia Anxiety Asthma Autism spectrum disorder Bipolar Disorder (manic-depression) Cardiovascular diseases Cat scratch fever Celiac disease Chronic Lyme disease Chronic fatigue syndrome (myalgic encephalomyelitis) Co-infections Cognitive dysfunction (brain fog) Depression Diabetes, Type II Epilepsy (seizures) Eye diseases Fibromyalgia Graves’ disease Hashimoto’s disease Headaches and migraines Hemophagocytic lymphohistiocytosis (HLH) Inflammatory bowel disease (Crohn’s disease and ulcerative colitis) Irritable bowel syndrome (IBS) Kidney disease Learning disabilities (ADHD, ADD, dyslexia) Mental and neurological conditions Multiple chemical sensitivity (MCS) Multiple sclerosis Obsessive compulsive disorder (OCD) Osteoarthritis Parkinson’s disease Periodontal disease and gingivitis Peripheral neuropathy Pernicious anemia Raynaud’s syndrome Reactive arthritis (Reiter’s syndrome) Restless leg syndrome Rheumatoid arthritis Schizophrenia Scleroderma Secondary hyperparathyroidism Systemic lupus erythematosus (SLE)

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Lyme Legislation Hearing a Success

U.S. Sen. Kristen Gillibrand, D-N.Y., and Blumenthal are co-sponsoring legislation that would establish a federal advisory committee on Lyme issues, consider a uniform reporting system and boost educational and research efforts to limit the disease spread’s and better treat patients.

On August 30, 2012, the US Senators held a hearing at the University of Connecticut Stamford where over 200 peple attended with many sharing heartbreaking stories of their personal experience with chronic Lyme disease.

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Reliable Diagnostic Test for Chronic Lyme Disease

Joe Burrascano, MD is a well-recognized specialist in the diagnosis and treatment of Lyme and associated complex infectious diseases, and the chronic illnesses that accompany them. With over two decades of experience and research in this field, he has appeared in and on virtually every form of media, has advised the CDC and NIH, testified before the U.S. Senate, an armed services joint subcommittee, and at various governor councils.  A 1978 graduate of the New York University School of Medicine, he became known world-wide for his experience and expertise in diagnosing and treating patients with tick-borne diseases and in his efforts to educate others- patients and physicians alike.

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Dr. Phil Discusses Chronic Lyme Disease

The  much-awaited Dr. Phil program, called “Deadly Consequences,” included a segment about Lyme disease. As I write this blog, it hasn’t aired on the west coast yet, so I haven’t seen it. But I’m getting ready to.

Guests include former model Stephanie Vostry, who is fighting to survive chronic Lyme, TV weathercaster/Lyme advocate Brooke Landau, Dr. Phil’s senior producer Kathy Giaconia, who has Lyme disease, Lyme-literate physician Dr. Chitra Bhakta, and the IDSA’s Dr. Paul Auwaerter.

This video is presented on You Tube courtesy of Lymepedia.org

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Euthanize Your Child Suffering With Severe and Painful Lyme Disease?

Annette says she wants the right to euthanize her severely-disabled children, who are being kept alive only by feeding tubes. What would you do? Then, former model, Stephanie Vostry, says she’s fighting to survive chronic Lyme disease, an illness some believe she may be faking. Plus, chronic Lyme disease hits close to home for a “Dr. Phil” staff member.

For more visit http://drphil.com.

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Nobel Prize Winner Describes Expanding Epedemic of Chronic Lyme in France

Interview in French (with English subtitles) of Professor Luc Montagnier, Nobel Prize for medicine in 2008, on the importance of detecting infections which may be at the root of chronic illness.

A great video and for validating that Borrelia and other co-infections can be chronic. We do know that Brucella,Mycoplasmas and Chlamydias are tolerated by Macrophages leading to chronic infection. We know that over 100 viruses may be transmitted by ticks, as well as bacteria, protozoans, and tapeworms, flukes, nematodes. Lyme is comprised of many types of pathogens and we need to know how these pathogens behave in the body and eradicate them.

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Garth Nicolson, Ph.D ILADS 2011 Presentation part 2 of 2

Patients with Lyme Disease commonly have systemic and central nervous system bacterial and other infections. In addition, other chronic illnesses where neurological manifestations are routinely found, such as fatiguing and autoimmune diseases, among others, also show systemic Lyme-associated bacterial infections that could be important in disease inception, progression or increasing the types/severities of signs and symptoms. Recent evidence indicates that infection-stimulated oxidative damage may cause some of the symptoms found in the above diseases. 

This can be treated by Lipid Replacement Therapy, and the presentation will review recent clinical trials where LRT has been used to reduce oxidative damage to mitochondrial function, symptoms such as fatigue and other damage to membrane function .  NT Factor is very effective at boosting lipid production. Dr. Nicolson, a renowned expert in mitochondrial research and lipid replacement therapy, spoke at the annual International Lyme and Associated Diseases Society Conference PropaxNT contains many vitamins and minerals that are also essential for recovering from chronic Lyme  disease. Propax can be purchased at Amazon here.

 

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Garth Nicolson, Ph.D ILADS 2011 Presentation part 1 of 2

 

Patients with Lyme Disease commonly have systemic and central nervous system bacterial and other infections. In addition, other chronic illnesses where neurological manifestations are routinely found, such as fatiguing and autoimmune diseases, among others, also show systemic Lyme-associated bacterial infections that could be important in disease inception, progression or increasing the types/severities of signs and symptoms. Recent evidence indicates that infection-stimulated oxidative damage may cause some of the symptoms found in the above diseases. 

 

This can be treated by Lipid Replacement Therapy, and the presentation will review recent clinical trials where LRT has been used to reduce oxidative damage to mitochondrial function, symptoms such as fatigue and other damage to membrane function .  NT Factor is very effective at boosting lipid production. Dr. Nicolson, a renowned expert in mitochondrial research and lipid replacement therapy, spoke at the annual International Lyme and Associated Diseases Society Conference PropaxNT contains many vitamins and minerals that are also essential for recovering from chronic Lyme  disease. Propax can be purchased at Amazon here.


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