Category Archives: Lyme Stories

Rock Stars Suffer With Lyme Too – Avril Lavigne

Never feel alone in your struggle – Avril is hardly a hypochondriac and yet she was treated the same way many of us were by the very doctors we counted on to help us. Watch:

World News Videos | US News Videos

Whole story: http://abcnews.go.com/Health/avril-lavigne-lyme-disease-questions-answered/story?id=30046495

Things on video that are incorrect:

  • You can contract Lyme from a tick in less than 36 hours.
  • Lyme is in all 50 states and in every country on the planet.
  • You don’t always get a bulls eye rash.
  • Early antibiotic treatments may not cure if you aren’t given enough for the correct length of time which may be longer than many doctors prescribe.

Test yourself on Lyme facts at:

http://lymediseaseresource.com/wordpress/can-you-find-true-or-false-in-this-post-on-chronic-lyme-msids/

 

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Dr. Sponaugle teaches the brain chemistry of Lyme disease

Dr Rick Sponaugle uses brain scans to teach Lyme patient Eric of Pennsylvania the brain science of Lyme disease. Dr Sponaugle explains how he always optimizes brain function first when treating Lyme patients and why optimizing brain function reduced Eric’s total body pain by 80 percent in his first week of treatment at Sponaugle Wellness Institute.

Posted in Chronic Lyme Disease, Coping with Lyme, Lyme Stories, Neurological Lyme Disease, The Doctor Says | Tagged , , | 2 Comments

Erica Volker Fights Chronic Lyme Disease

By Paul Volker

This is the story Erica Valker’s story battle with Chronic Lyme Disease. Three years ago she was happy, active and seemingly healthy. Erica has now been debilitated by Lyme disease and multiple co-infections that have her fighting for her life.

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Amy Tan and Dr. Stricker Interview

Sunday, August 03, 2014
BEYOND THE HEADLINES
August 3, 2014
Lyme Disease
Hosted by ABC7’s Cheryl Jennings

Each Beyond the Headlines show focuses on a different topic affecting the people who make up the fabric of the Bay Area. What do you know about the disease that you could get from a tick bite? It’s called Lyme Disease.

At first, the U.S. Centers for Disease Control only reported about 30,000 cases a year. But, new studies reveal the numbers could be far higher… as many as 300,000 a year. Now, the CDC estimates that number could be as high as a million cases a year!

Posted in Chronic Lyme Disease, Coping with Lyme, Diagnosis of Lyme disease, Lyme Stories, Neurological Lyme Disease, Personal stories, Symptoms of Lyme, Treatment of Lyme disease | Tagged , , | Leave a comment

Erica’s Fight Against Chronic Lyme Disease


Intense story that many will relate to. None of these alternative treatments are covered by insurance and at some point we run out of money and get kicked to the curb by our doctors, insurance companies and in most cases family and friends give up too. Paul is a rare husband who is sticking by his wife. They try antibiotics, glutathione, ozone blood therapy – she still experiences adrenal failure – basically the immune system shuts down and you are forced to build it back up which can’t begin until the disease is eradicated or at least pushed back to a tolerable “load”.

Posted in Alternative Treatments, Chronic Lyme Disease, Coping with Lyme, Diagnosis of Lyme disease, Lyme Stories, Treatment of Lyme disease | Tagged , , , | Leave a comment

Lyme Healing – A Love Story

This is one hour but very inspirational!

Published on Aug 27, 2012

Justin & Christa Vanderham
http://www.justinandchrista.ca

This is a movie about our 5 years of fighting for our life, countless treatments, and the roller coaster Lyme can put you on. Christa fought for her life and we are still here to tell the tale!

NOTE FROM JENNA: The toxin binding powder discussed towards the end of the video is Cholestyramine. This is especially good for ridding the intestines of toxins that would otherwise recirculate.

“Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for “fair use” for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational or personal use tips the balance in favor of fair use.”

No copyright infringement intended. I do not profit from, or claim any rights to any of these songs and artists:

Joy Willaims – Say Goodbye
Natalie Grant – Held, Our Hope Endures
Warren Barfield – Love is Not a Fight
LL Cool J – Down the Aisle
Lifehouse – Storm
Jill Paquette – Come to Me
Michael Buble – Everything
Andrew Peterson – Dancing in the Minefields
Taylor Swift – Love Story
Grey Holiday – You Belong to Me
John Waller -While I’m Waiting
Chris Rice – When Did You Fall in Love With Me
Casting Crowns – Praise You in This Storm, Lifesong, Voice of Truth
Sanctus Real – Lead Me

Posted in Chronic Lyme Disease, Co-infections, Coping with Lyme, Diagnosis of Lyme disease, Lyme Stories, lyme-videos | Tagged , , | Leave a comment

Heather Needs Our Help – Now It’s Too Late

Updated August 1, 2014 with sorrow Soon after I published this, Heather Askeland took her own life due to her desperate physical and financial situation. Instead of removing the video, I felt that Heather’s death could potentially help someone suffering with these issues. Suicide is not the answer. However for some, it appears to be the only path out of misery and pain…these poor souls deserve our compassion. Shame on the medical community and insurance companies that put so many people in this horrible situation. Published on Apr 10, 2014 by Heather Askeland “I am desperately ill with Lyme disease, am homeless and have no family willing to help. This is, unfortunately, a life or death situation. I need an angel to come forward and help me save my life. PLEASE FORWARD WIDELY. please.” For more info about who I am, google “Heather Askeland poetry.” My previous youtube channel is “heiwalove,” which has my Lyme story on it (recorded when I was doing much better). Heather was asking for an angel…she is with the angels now.

Posted in Chronic Lyme Disease, Coping with Lyme, Lyme Stories, lyme-videos, Personal stories | Tagged , , | 1 Comment

Yolanda Foster Shares About Her Chronic Neuro-Borreliosis

Listen to Yolanda Foster from “Beverly Hills Housewives” share her story of being diagnosed and finding a treatment for chronic Lyme disease:

 Yolanda Foster talks about Lyme Disease and her Lyme Disease Treatment over the past few months. The LRA or Lyme Research Alliance held a GALA event in Connecticut on April 6th to announce an award to Yolanda. She experienced joint pain, insomnia, and other lyme symptoms and even said it felt like an infection in her brain. Yolanda was treated at Sponaugle Wellness Institute in Palm Harbor, Fl as a referral from Suzanne Somers. |http://http://sponauglewellness.com/w… | Natural Lyme Treatment | Sponaugle Wellness Institute, 32815 US Highway 19 North, Palm Harbor, FL 34684 | 888-775-2770

Posted in Chronic Lyme Disease, Co-infections, Diagnosis of Lyme disease, Lyme Stories, lyme_stories, Neurological Lyme Disease, Personal stories, Treatment of Lyme disease | Tagged , , , , | Leave a comment

Dr. Sapi Interviewed on WTIC Fox 61 About Biofilms

WTIC Fox 61, Dec.11, 2013: Dr. Eva Sapi, member of UNH’s biology and environmental science department talks about the biofilm produced by Borrelia bergdorferi, the bacteria that causes Lyme disease. Footage courtesy of WTIC Fox 61. For more information about the University of New Haven, visit http://www.newhaven.edu. Also interviewed is Phylis Mervine, the founder of LymeDisease.org.

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Dr Rick Sponaugle Interviews Recovered Client

Dr. Rick Sponaugle, Medical Director of Sponaugle Wellness Institute, explains the brain science of Lyme disease to Jennifer, a Lyme patient from Virginia. Jennifer states that her depression, brain fog, chronic fatigue and fibromyalgia are gone after 7 weeks of Lyme treatment at Sponaugle Wellness.

Posted in Chronic Lyme Disease, Co-infections, Coping with Lyme, Lyme Stories, lyme-videos, Personal stories, Treatment of Lyme disease | Tagged , , , | Leave a comment

Saratoga Lyme Forum in May 2012

Here are the links to the Skidmore videos from a presentation on Lyme disease and co-infections, including time index for location of each speaker (use your mouse to slide the timer to the indicated time):

VIDEO 1
@ 25:00 Rep. Chris Gibson, US Congress 27th District, NY
@ 31:00 Pamela Weintraub, Author of “Cure Unknown”
@ 1:11:39 Holly Ahern, Microbiologist, Lyme Mother, “A Tale of Two Lymes”
@ 1:43 Lorraine Johnson, Esq., CEO Lymedisease.org, Board Member ILADS, “The Cost of Chronic Lyme”

VIDEO 2
@ 20:28 “Leah” Lyme and Babesia patient of Dr. Richard Horowitz (Friends and Family should watch!)
@ 23:50 Dr. Richard Horowitz “Multi-Systemetic Infectious Disease Syndrome” (A MUST SEE!)

VIDEO 3
@10:45 Dr. Daniel Cameron, MD, MPH Former President of ILADS, Beth Israel Medical Center, Mt. Sinai Hospital. ”Obstacles and Solutions for Tick-borne Diseases”
@ 45:24 Dr. David Lieby, MS, PhD ”Challenges of Tick-borne Illness Detection” (Very informative if you are interested in learning more about current and future tests for LD)
@1:46:45 Dr. Kenneth Liegner “A Leading Warrior in Lyme” (VERY GOOD and a MUST SEE for EVERYONE)

VIDEO 4
Conclusion by Rep. Chris Gibson

Posted in Babesia A Lyme Coinfection, Chronic Lyme Disease, Co-infections, Lyme in the News, Lyme Stories, Medical Debate, Neurological Lyme Disease, Politics, Research and Development | Leave a comment

Dr. Phil Discusses Chronic Lyme Disease

The  much-awaited Dr. Phil program, called “Deadly Consequences,” included a segment about Lyme disease. As I write this blog, it hasn’t aired on the west coast yet, so I haven’t seen it. But I’m getting ready to.

Guests include former model Stephanie Vostry, who is fighting to survive chronic Lyme, TV weathercaster/Lyme advocate Brooke Landau, Dr. Phil’s senior producer Kathy Giaconia, who has Lyme disease, Lyme-literate physician Dr. Chitra Bhakta, and the IDSA’s Dr. Paul Auwaerter.

This video is presented on You Tube courtesy of Lymepedia.org

Posted in Chronic Lyme Disease, Diagnosis of Lyme disease, Lyme Disease and Ticks, Lyme in the News, Lyme Stories, Medical Debate, Personal stories, Symptoms of Lyme | Tagged , , , | Leave a comment

Euthanize Your Child Suffering With Severe and Painful Lyme Disease?

Annette says she wants the right to euthanize her severely-disabled children, who are being kept alive only by feeding tubes. What would you do? Then, former model, Stephanie Vostry, says she’s fighting to survive chronic Lyme disease, an illness some believe she may be faking. Plus, chronic Lyme disease hits close to home for a “Dr. Phil” staff member.

For more visit http://drphil.com.

Posted in Lyme in the News, Lyme Stories, Medical Debate, Personal stories | Tagged , , , | 2 Comments

Hope for Chronic Lyme from 2011 Gala Event

The following video was presented at The Time For Lyme 2011 fundraising gala, and tells the stories of
former IBM executive Richard (Dick) Gerstner and fashion designer Ally Hilfigers battle with Lyme
disease.

The section about the new and exciting research being conducted by Karen Newell, acclaimed scientist at
Texas A& M, is the researcher working with Viral Genetics on the drug listed in the post above, and whose
painstaking and cutting edge work may hold the promise to unlocking the secrets of Chronic Lyme
disease.

Warning, this is a fundraising video so the last part is an appeal for money – a worthy cause for any who can afford
charities.

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Borrelia Infections — diagnosis and treatment – Joseph J. Burrascano Jr. MD

This is a full presentation lasting almost one hour – filmed in May 2012.
Joseph J. Burrascano Jr. MD is a well recognized specialist in the diagnosis and treatment of Lyme and associated complex infectious diseases, and the chronic illnesses that accompany them. With over two decades of experience and research in this field, he has appeared in and on virtually every form of media, has advised the CDC and NIH, testified before the US Senate, an armed services joint subcommittee, and at various governor’s councils. A founding member of ILADS, he currently is an active Board Member of the International Lyme and Associated Diseases Educational Foundation. His current areas of interest include his ongoing project, ?The Lyme and Associated Diseases RegistryTM which follows each selected patient from the beginning to the end of their illness, to try to divine out what the various symptoms mean, which tests are worthwhile, to identify the medications and treatments that have the highest likelihood of curing the illness, and to uncover any possible drawbacks to treatment. In addition, he is actively involved in study of the newly discovered retrovirus, HGV, thought to be associated with chronic neuroimmune diseases, including chronic Lyme. Finally, his lifelong interest in nutrition has come to bear with his present consultative work with various nutritional supplement suppliers. No longer in clinical practice, Dr. Burrascano works full time in the biotech arena to further medical research in tick-borne and related diseases.

Posted in Chronic Lyme Disease, Diagnosis of Lyme disease, Lyme in the News, Lyme Stories, Research and Development | Leave a comment