Category Archives: Coping with Lyme

Avril Lavigne Opens Up About Her Struggle With Lyme

Published on Jun 29, 2015

Singer Avril Lavigne said she’s seeing progress in her treatment for Lyme disease, which struck her last year while she was on tour. The Canadian singer, known for multiple hits in the early 2000s, said trying to get a diagnosis was the worst time of her life.

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Pain and Brain Chemistry with Lyme Disease

Dr Rick Sponaugle uses brain scans to teach Lyme patient Eric of Pennsylvania the brain science of Lyme disease. Dr Sponaugle explains how he always optimizes brain function first when treating Lyme patients and why optimizing brain function reduced Eric’s total body pain by 80 percent in his first week of treatment at Sponaugle Wellness Institute.

Dr. Sponaugle has successfully helped many people to recover from Lyme. His approach is to treat the brain first. Very instructive video.

© Copyright 2013 Marvin Sponaugle, MD All Rights Reserved

Posted in Chronic Lyme Disease, Coping with Lyme, Neurological Lyme Disease, Symptoms of Lyme, The Doctor Says | Tagged , , , | Leave a comment

Dr. Sponaugle teaches the brain chemistry of Lyme disease

Dr Rick Sponaugle uses brain scans to teach Lyme patient Eric of Pennsylvania the brain science of Lyme disease. Dr Sponaugle explains how he always optimizes brain function first when treating Lyme patients and why optimizing brain function reduced Eric’s total body pain by 80 percent in his first week of treatment at Sponaugle Wellness Institute.

Posted in Chronic Lyme Disease, Coping with Lyme, Lyme Stories, Neurological Lyme Disease, The Doctor Says | Tagged , , | 2 Comments

Dr. Burgdorfer Calls Medical Debate A Shameful Affair

The discoverer of the spirochete that causes Lyme disease passed away yesterday, November 17, 2014.

In 1980, researcher Willy Burgdorfer, a researcher and expert in spirochetal diseases at Rocky Mountain Laboratories (RML) in Hamilton, Montana, along with his colleague Alan Barbour, M.D. from the University of Texas Health Science Center. The scientists had been studying a large number of ticks in an effort to determine the cause of Rocky Mountain Spotted Fever.

In examining the ticks for rickettsiae (the bacteria that causes Rocky Mountain Fever), Burgdorfer noticed “poorly stained, rather long, irregularly coiled spirochetes.” Further examination revealed spirochetes in 60% of the ticks. Dr. Burgdorfer and Dr. Barbour continued to study this spiral-shaped bacteria or spirochete, from infected deer ticks, and in November 1981, the two scientists discovered that the spirochete caused both the symptoms of Lyme disease and the strange bulls-eye rash called erythema migrans (EM). More than half of infected persons do not experience or remember a rash.

The spirochete was later named Borrelia burgdorferi in honor of Dr. Burgdorfer’s role in its discovery. Watch the following video interviewing Dr. Burgdofer about his views on the Lyme disease controversy which he calls “a shameful affair.”

Posted in Chronic Lyme Disease, Coping with Lyme, Diagnosis of Lyme disease, lyme-videos, Medical Debate | Tagged , | 1 Comment

Be Careful on the Appalachian Trail

Local station picked up this story filmed near Daleville, VA in early November 2013  by Logan McCulloch as he was passing through on his southbound Appalachian Trail hike to raise awareness for Lyme disease. Thanks to his friend John Burrows for arranging this segment and to he and his wife Susan for hosting him in their home.

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Erica Volker Fights Chronic Lyme Disease

By Paul Volker

This is the story Erica Valker’s story battle with Chronic Lyme Disease. Three years ago she was happy, active and seemingly healthy. Erica has now been debilitated by Lyme disease and multiple co-infections that have her fighting for her life.

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Amy Tan and Dr. Stricker Interview

Sunday, August 03, 2014
BEYOND THE HEADLINES
August 3, 2014
Lyme Disease
Hosted by ABC7’s Cheryl Jennings

Each Beyond the Headlines show focuses on a different topic affecting the people who make up the fabric of the Bay Area. What do you know about the disease that you could get from a tick bite? It’s called Lyme Disease.

At first, the U.S. Centers for Disease Control only reported about 30,000 cases a year. But, new studies reveal the numbers could be far higher… as many as 300,000 a year. Now, the CDC estimates that number could be as high as a million cases a year!

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Erica’s Fight Against Chronic Lyme Disease


Intense story that many will relate to. None of these alternative treatments are covered by insurance and at some point we run out of money and get kicked to the curb by our doctors, insurance companies and in most cases family and friends give up too. Paul is a rare husband who is sticking by his wife. They try antibiotics, glutathione, ozone blood therapy – she still experiences adrenal failure – basically the immune system shuts down and you are forced to build it back up which can’t begin until the disease is eradicated or at least pushed back to a tolerable “load”.

Posted in Alternative Treatments, Chronic Lyme Disease, Coping with Lyme, Diagnosis of Lyme disease, Lyme Stories, Treatment of Lyme disease | Tagged , , , | Leave a comment

Lyme Healing – A Love Story

This is one hour but very inspirational!

Published on Aug 27, 2012

Justin & Christa Vanderham
http://www.justinandchrista.ca

This is a movie about our 5 years of fighting for our life, countless treatments, and the roller coaster Lyme can put you on. Christa fought for her life and we are still here to tell the tale!

NOTE FROM JENNA: The toxin binding powder discussed towards the end of the video is Cholestyramine. This is especially good for ridding the intestines of toxins that would otherwise recirculate.

“Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for “fair use” for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational or personal use tips the balance in favor of fair use.”

No copyright infringement intended. I do not profit from, or claim any rights to any of these songs and artists:

Joy Willaims – Say Goodbye
Natalie Grant – Held, Our Hope Endures
Warren Barfield – Love is Not a Fight
LL Cool J – Down the Aisle
Lifehouse – Storm
Jill Paquette – Come to Me
Michael Buble – Everything
Andrew Peterson – Dancing in the Minefields
Taylor Swift – Love Story
Grey Holiday – You Belong to Me
John Waller -While I’m Waiting
Chris Rice – When Did You Fall in Love With Me
Casting Crowns – Praise You in This Storm, Lifesong, Voice of Truth
Sanctus Real – Lead Me

Posted in Chronic Lyme Disease, Co-infections, Coping with Lyme, Diagnosis of Lyme disease, Lyme Stories, lyme-videos | Tagged , , | Leave a comment

Heather Needs Our Help – Now It’s Too Late

Updated August 1, 2014 with sorrow Soon after I published this, Heather Askeland took her own life due to her desperate physical and financial situation. Instead of removing the video, I felt that Heather’s death could potentially help someone suffering with these issues. Suicide is not the answer. However for some, it appears to be the only path out of misery and pain…these poor souls deserve our compassion. Shame on the medical community and insurance companies that put so many people in this horrible situation. Published on Apr 10, 2014 by Heather Askeland “I am desperately ill with Lyme disease, am homeless and have no family willing to help. This is, unfortunately, a life or death situation. I need an angel to come forward and help me save my life. PLEASE FORWARD WIDELY. please.” For more info about who I am, google “Heather Askeland poetry.” My previous youtube channel is “heiwalove,” which has my Lyme story on it (recorded when I was doing much better). Heather was asking for an angel…she is with the angels now.

Posted in Chronic Lyme Disease, Coping with Lyme, Lyme Stories, lyme-videos, Personal stories | Tagged , , | 1 Comment

Lyme Disease Growing in Maine

This story is particularly poignant for me after living 20 years in the state and watching the number of people I know personally resist the idea of such a terrifying epidemic, and trying to attribute Lyme symptoms to other ailments.

“The controversy comes from whether or not persisting symptoms equals persisting infection. Some physicians are concerned that they will become–targeted isn’t the right word, maybe it is, but they may be looked at and investigated if they treat with longer courses of antibiotics,” said Szantyr.

Following are some Lyme Disease prevention tips:1. Be aware of tick habitats2. Wear light-colored clothing outdoors3. Tuck shirt into pants, pants into socks4. Permethrin-treated fabrics are ideal5. Repellents containing DEET6. Put clothes in dryer–30 minutes on high7. Do a full-body naked tick check when you return indoors8. Check your pets for ticks9. Cut grass short, clear leaves away from house

World-Wide Lyme Disease Protest:worldwidelymediseaseprotest.blog­spot.com

Capital Area Lyme Support Group:facebook.com/capitolarealymesuppor­t

Property and Copyright
http://wabi.tv

http://wabi.tv/2014/05/19/lyme-diseas…

http://wabi.tv/2014/05/20/lyme-diseas…

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2014-05-30 Battling Lyme disease – Power & Politics Canada, US and UK

Nicole was amazing to hold it together through this interview!

Nicole’s struggle with Lyme disease and Elizabeth May hopes her private members bill becomes law. As seen on Power & Politics (could not be a more fitting title for this interview).

Property and Copyright
CBC News – Power & Politics

Posted here only for the purpose of education and raising awareness.

*Missing the first few seconds, I inserted (using the original YouTube clip) at the beginning in order to make it complete. You can see the obvious transition at the beginning.

 

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Try Laughter Yoga to Feel Better Consistently!

A clear, simple, introduction to laughter yoga with Robert Rivest, CLYT. More info and videos at: http://robertrivest.com

Robert explains: What laughter Yoga is, Why you should do Laughter Yoga and How to do Laughter Yoga! Includes: “The 5 Key Points of Laughter Yoga”, “The 3 Reasons to Practice laughter Yoga” & “The 4 Steps of Laughter Yoga” More info and videos at: http://robertrivest.com/

Business Keynotes, Staff Appreciation and Corporate Eventshttp://www.robertrivest.com/corporate/

What is Laughter Yoga http://www.robertrivest.com/laughtery…

CLYL Training: http://www.robertrivest.com/laughtery…

Mindful Meditation and Creative Tai- Chihttp://www.robertrivest.com/mindfulness/

Laughter Yoga combines interactive laughter exercises with deep centering breaths and calming movements. It is based on scientific studies that show that the body can not tell the difference between “real” or “fake” laughter, you get the same health benefits to your body and mind.

Laughter Yoga is simply bringing people together as a group with belly laughs, belly breaths and light playful movement. It can be performed gently (in a chair if needed) or standing and moving throughout the room with full energy and enthusiasm!

All Laughter Yoga movements can be adapted for EVERY BODY!
No yoga mats or flexibility needed!

Robert Rivest’s Laughter Yoga programs for health, wellness and stress relief help people of all ages feel healthier, happier, and have much more energy!

How does it work? Laughter is initiated in a group with full body laughter exercises, clapping, eye contact and youthful playfulness. The “simulated” laughter soon turns into real and contagious laughter that brings more oxygen to our body and brain, lifting our spirits and carrying over into our work, school and everyday lives.
In 1995 Dr. Madan Kataria, a Physician from Mumbai, India, launched the first Laughter Club with merely a handful of people. Today, it has become a worldwide phenomenon with more than 6000 Social Laughter Clubs in over 60 countries.

In Laughter Yoga Clubs, Laughter is joyfully simulated in a group with full body laughter exercises/games and childlike playfulness. The “simulated” laughter soon turns into real and contagious laughter that lifts our spirits and carries over into our every day lives

Laughter Yoga is based on a scientific fact that the body cannot differentiate between laughter exercises and real laughter. Anyone can Laugh for No Reason, without relying on humor, jokes or comedy and get the same physiological and psychological benefits (boosts immune system, releases endorphins, increases oxygen intake, decreases stress hormones, creates a joyful connection with others, and enables you to laugh more easily at life’s travails).

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Dr Rick Sponaugle Interviews Recovered Client

Dr. Rick Sponaugle, Medical Director of Sponaugle Wellness Institute, explains the brain science of Lyme disease to Jennifer, a Lyme patient from Virginia. Jennifer states that her depression, brain fog, chronic fatigue and fibromyalgia are gone after 7 weeks of Lyme treatment at Sponaugle Wellness.

Posted in Chronic Lyme Disease, Co-infections, Coping with Lyme, Lyme Stories, lyme-videos, Personal stories, Treatment of Lyme disease | Tagged , , , | Leave a comment

Lyme Disease Continues to Grow in Canada.

Jim Wilson President of the Canadian Lyme Disease Foundation speaks about Lyme disease.
Lyme disease is the fastest growing infectious disease in North America.

Disease carrying ticks are becoming more and more prevalent in Canada and are on the move. These ticks are transported randomly throughout Canada by our friendly migratory birds that can also harbor Lyme disease and other diseases in their blood.

Lyme disease can cause long‐term health issues if not identified and treated early. It can affect the brain, eyesight, hearing, heart, nervous system, muscles, joints, digestive tract, and lymph nodes.

Lyme disease has been misdiagnosed as multiple sclerosis, Parkinson’s disease, ALS (Lou Gehrig’s disease), several forms of arthritis, chronic fatigue syndrome, fibromyalgia, bowel disorders, and many other diagnoses.

Ticks can be found in your lawn, in tall grass or brush, on logs or woodpiles. Pets can carry ticks into your home.

The British Columbia Centre for Disease Control has found ticks carrying Lyme disease throughout the southern portion of the province including the Vancouver area, Victoria, the Okanagan, and the Kootenays.

For more information visit the website canlyme.com

Posted in Chronic Lyme Disease, Coping with Lyme, Diagnosis of Lyme disease, Lyme Disease and Ticks, Lyme in the News, lyme-videos, Medical Debate | Tagged , , | Leave a comment

Expert Explains Prevailing Myths About Lyme Disease Part Two

Published on Aug 22, 2013
This is a 30 minute video with Dr. Alan MacDonald, a retired M.D. and board certified in Anatomic Pathology and Clinical Pathology. This revealing interview from May 2013 (part 2 of 3) covers many misunderstandings associated with Lyme disease.

Brains and eyes as infection sanctuary sites
Cloaking of spirochetes in complementary proteins
Borrelia lifeforms: biofilms, communities, persisters, liposomes
Syphilis spirochetes and similarities
Spirochetes similar in biofunction as sperm
Anatomy of a tick assault
Six ways of evading the human immune system
The CDC and Borrelia biofilms
Atomic force microscopy: confirms Borrelia biofilms
101 strains of Borrelia, 150 global genotypes
Babesiosis types
Why strain variation makes testing inaccurate

The complete interview is available on DVD from The Arthroplasty Patient Foundation. Please offer an any-sized, tax deductible donation at this link:

http://www.arthropatient.org

Posted in Biofilms, Chronic Lyme Disease, Coping with Lyme, Diagnosis of Lyme disease, Medical Debate, Research and Development | Tagged , , | Leave a comment

Treatments For Neurological Lyme Disease

Antibiotics seem to be the most successful treatment for neurological Lyme disease. However there are many alternative treatments that can be utilized in addition to herbal or pharmaceutical treatments.  This 11 minute video is interesting and very inspirational.

We need to stop seeing ourselves as victims of a terrible disease, and see ourselves as recovering.  “I AM” is an easy tool to fight the depression, victimization and hopelessness that comes with neurological Lyme disease.  “I AM” … These words are tremendously powerful! Be careful what you put after them, for surely you they can create happiness or misery.

Published on Apr 7, 2013
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Never Give Up

Neuro-Lyme can cause obesity due to lack of motor skills and neurological pain in all joints leaving many of us bedridden and acutely depressed – so much so that suicide is the number one cause of death (that we know of currently) in Lyme disease.

What can we do?

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Something Easy to Help Recover From Chronic Neuro Lyme Disease

Watch this with an open mind.  I realize that we are all at different levels of disability, however, these little ideas can have a big change. But honestly, isn’t even a small change towards better health worth more than money can buy?

Amy Cuddy shows how “power posing” — standing in a posture of confidence, even when we don’t feel confident — can affect testosterone and cortisol levels in the brain, and might even have an impact on our chances for success.

Online, distance, management and leadership courses provided by Eliesha Training: http://distancelearning.eliesha.com/
Twitter: https://twitter.com/ElieshaTraining
Facebook: http://www.facebook.com/ElieshaDistan…

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