5 Hours Later
peterpauliepan asked:
How quickly I can go from feeling great to feeling awful. A look into daily life with chronic Lyme disease. underourskin.com ilads.org turnthecorner.org … peterpauliepan andromaca07 lyme disease awareness chronic neurological how you can help prevent tick bites
Caroline
August 13th, 2009 at 8:42 pm
Caroline
not usually conscious or aware but i do have moments where i can hear coming into or out of these seizures. there’s some great websites about there for epilepsy information.
August 17th, 2009 at 7:04 am
Chris
Carey, are you conscious during a limbic seizure? (I think you already know that I don’t have lyme, but I do have epilepsy). I’m trying to learn about seizures. I’m going to comment on one of your later vids about lyme. Thanks!
August 20th, 2009 at 2:10 pm
Violette
glad that i could shed some light on the subject. they’ve gotten a bit better since then. i do have them almost daily in some form or another but thankfully me medications keep them from being too overwhelming. they rarely go beyond mild at this point. thanks for commenting.
August 22nd, 2009 at 5:43 pm
Samantha
Thanks for sharing and explaining about what limbic seizure is. I know this is very personal. I am so sorry that you experience these. : (
I do hope you get a break from having them and one day not have them at all. Hang in there!
August 25th, 2009 at 4:29 am
Christopher
i had the same issue before i got diagnosed with lyme. neurologists called me a liar and they could never trigger my grand-mals. the difference in limbic seizures and grand-mals is where the seizure activity occurs in the brain. for grand-mals it is in the temporal lobe and for limbic seizures they are in the limbic system of the brain. they are not commonly discussed or know among most neurologists. it occurred with syphilis patients as well as lyme patients.
August 25th, 2009 at 11:08 am
Michelle
I’ve never heard of this kind of seizures, but watching yours explains a lot about my kind of seizures. I don’t have lyme, but I do have epilepsy, and whenever someone thinks I need to go to the hospital, they always tell me I’m not having seizures just because it’s not grand mal. Thanks for this video. I’m going to read up more on limbic seizures now. Take care!
August 28th, 2009 at 8:45 pm
Gerald
anything to bring more awareness and hopefully to allow physicans to gain knowledge in how to diagnose and treat this illness and with that more research to one day find better treatments.
August 31st, 2009 at 6:00 am
Kevin
Thank you for showing the world what Lyme Disease can do to us.
I admire your courage because it isn’t easy to show something so personal.
August 31st, 2009 at 10:02 pm
Tim
not a lot of comments. usually 3-5 depending on how many views the video gets.
i don’t think that it is common knowledge just how powerful this Lyme monster is. right now in the US it is more prevalent that HIV, yet under diagnosed and under researched. check out the under our skin trailer, you can see another lyme patient having a limbic seizure. i have grand-mals/absence seizures as well but the limbic system is highly compromised in lyme patients.
i just try to be truthful about my life.
September 1st, 2009 at 12:59 pm
Bethany
Carey, do you get many comments? I swear it was hard to try to find the area with that “beta view” so I could get to an area where I knew I could comment.
Anyhow. Wow. I am in the medical field of sorts and get to hear of these diseases but never really get to know or see the true effects of things. I didn’t know what limbic seizures were about. Bless your heart for having to go through all this. Truly, I don’t know what more to say. I just wish you didn’t have to go through all this.