How quickly I can go from feeling great to feeling awful. A look into daily life with chronic Lyme disease. underourskin.com ilads.org turnthecorner.org
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5 Hours Later11 comments to 5 Hours LaterLeave a Reply |
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I have those conscious seconds coming out of grand mals and complex partials. I can hear myself groaning after a CP, and the last GM I had, I came out of it and was semi-conscious for a few seconds. It felt really violent. I passed out after a few seconds. I’ve seen some of the great sites online! This Sat I’m going to an Epilepsy Society “convention” or whatever you want to call it. I’d been to one before and learned a lot. This time several of my neurologists will be speaking. Cool!
not usually conscious or aware but i do have moments where i can hear coming into or out of these seizures. there’s some great websites about there for epilepsy information.
Carey, are you conscious during a limbic seizure? (I think you already know that I don’t have lyme, but I do have epilepsy). I’m trying to learn about seizures. I’m going to comment on one of your later vids about lyme. Thanks!
glad that i could shed some light on the subject. they’ve gotten a bit better since then. i do have them almost daily in some form or another but thankfully me medications keep them from being too overwhelming. they rarely go beyond mild at this point. thanks for commenting.
Thanks for sharing and explaining about what limbic seizure is. I know this is very personal. I am so sorry that you experience these. : (
I do hope you get a break from having them and one day not have them at all. Hang in there!
i had the same issue before i got diagnosed with lyme. neurologists called me a liar and they could never trigger my grand-mals. the difference in limbic seizures and grand-mals is where the seizure activity occurs in the brain. for grand-mals it is in the temporal lobe and for limbic seizures they are in the limbic system of the brain. they are not commonly discussed or know among most neurologists. it occurred with syphilis patients as well as lyme patients.
I’ve never heard of this kind of seizures, but watching yours explains a lot about my kind of seizures. I don’t have lyme, but I do have epilepsy, and whenever someone thinks I need to go to the hospital, they always tell me I’m not having seizures just because it’s not grand mal. Thanks for this video. I’m going to read up more on limbic seizures now. Take care!
anything to bring more awareness and hopefully to allow physicans to gain knowledge in how to diagnose and treat this illness and with that more research to one day find better treatments.
Thank you for showing the world what Lyme Disease can do to us.
I admire your courage because it isn’t easy to show something so personal.
not a lot of comments. usually 3-5 depending on how many views the video gets.
i don’t think that it is common knowledge just how powerful this Lyme monster is. right now in the US it is more prevalent that HIV, yet under diagnosed and under researched. check out the under our skin trailer, you can see another lyme patient having a limbic seizure. i have grand-mals/absence seizures as well but the limbic system is highly compromised in lyme patients.
i just try to be truthful about my life.
Carey, do you get many comments? I swear it was hard to try to find the area with that “beta view” so I could get to an area where I knew I could comment.
Anyhow. Wow. I am in the medical field of sorts and get to hear of these diseases but never really get to know or see the true effects of things. I didn’t know what limbic seizures were about. Bless your heart for having to go through all this. Truly, I don’t know what more to say. I just wish you didn’t have to go through all this.