Welcome to Neuro-Lyme.com

This website has been created to help - if you are suffering with Neuro-Lyme symptoms, YOU ARE NOT ALONE!

NEWS FLASH:  Finally a diagnostic test that is 100% accurate (barring contamination) that was developed with Dr. Burrascano as a fully participating consultant (although he has no financial interest in the company. Read about it HERE.

The following video was presented at The Time For Lyme 2011 fundraising gala, and tells the stories of former IBM executive Richard (Dick) Gerstner and fashion designer Ally Hilfigers battle with Lyme disease.

The section about the new and exciting research being conducted by Karen Newell, acclaimed scientist at Texas A& M, is the researcher working with Viral Genetics on the drug listed in the post above, and whose painstaking and cutting edge work may hold the promise to unlocking the secrets of Chronic Lyme disease.

Warning, this is a fundraising video so the last part is an appeal for money - a worthy cause for any who can afford charities.



Neuro-Lyme.com - What is it?

As a result of my ordeal, I have dedicated my life to helping others, and that is what I hope to do with this website and my other Lyme and health related sites:

You will find all the latest medical and scientific information about chronic Lyme along with product recommendations, alternative healing protocols and personal stories of courage and hope.  I wish to thank all my readers for their patience with respect to my writing stops and starts. 

I have FINALLY turned the corner, but have unfortunately joined the horrifying statistic of 80% marriage/relationship break ups, and am dealing with divorce and a move from Lymeland to Maui. My recovery continues in spite of the tremendous grief and arduous effort involved in moving, and I try to focus on my thankfulness for pinning down a successful protocol.

It's hard to believe that when I was first diagnosed with Lyme disease, I felt so relieved! Months of non-conclusive tests, frustrating evaluations, and the growing sense of insanity...it was going to be all behind me now! I had Lyme disease, and I was actually relieved to have all that fear and worry over, naively thinking the recovery would be easy.

Little did I know that my nightmare had only just begun.

That was back in the fall of 2007.

Lyme disease is the fastest growing infectious disease in the world.

Without reliable testing and treatment programs, thousand upon thousands of people are slipping through the cracks and developing chronic cases of Lyme, especially neurological Lyme.

Also, with spirochetes infecting all bodily fluids, sexual transmission is adding to the "Tsunami" of chronic neurological disease that is spreading all over the world.

Neuroborreliosis (the correct term for Neuro-Lyme), encompasses any type of Lyme disease that has invaded the central nervous system, and there are over 90 species of Borrelia with more being discovered with frightening regularity.  And yet the CDC only tests for one species, and they only look for 10 proteins out of a possible 25 in one strain.

According to Dr. Luft at SUNY School of Medicine, to make the Western Blot accurate, every genome in every currently known species of Borrelia would have to be mapped - 1800 proteins in all - a far cry from the 10 we now test.

More alarming, studies at the SUNY Medical Center have proven that Lyme spirochetes can infiltrate the central nervous system within 24 hours of infection, so even though neurological symptoms may take weeks or months to appear, the number of victims is certainly much higher than presently recognised.

Given the fact that there are very few experienced and knowledgeable specialists treating Lyme disease, there are even fewer capable of understanding and treating neuroborreliosis.

As with Lyme arthritis and other forms of chronic Lyme disease, the patients most often requires access to the most recent developments in science and medicine with respect to their unique presentation of the disease.

This can be a lonely and frightening aspect of an already terrifying illness. But we are not alone, and progress from dedicated researchers is being made every day.

We have reason to hope.








Jenna's Neuro-Lyme disease website

Jenna in Hawaii


 Jenna's Video Blog 


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 Lyme Disease
 History of LD
 Biology of LD
 Symptom List
 Mysterious shapes
 Medical Debate
 Social Securilty Disability
 Lab 257
 Neuropathic Pain
 Neurophsychiatric Lyme
 Dr. Coyle at SUNY
 Dr Lee Cowden
 Marshall Protocol
 Dr. Klinghardt
 Dr. Zhang
 MMS Protocol
 New Salt Protocol
 Buhner Herbal Protocol
 Victoria's Protocol
 HCL Protocol
 Violence and Lyme Disease
 Notes From Dr. Fallon
 Review of Neuroborrelliosis
 Psychological Evaluation of Pediatric, Neurologic Lyme Disease
 Lyme Disease is fastest growing disease
 Balance pH


When You Herx:

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